Kaitlin Atkinson Family Resource Library
Children's Hospital of Eastern Ontario
401 Smyth Rd., Ottawa, ON K1H 8L1
General Information and Resources for Parents
Resource List for Kids
Resources for Learning, Schools and Teachers
General Information and Resources for Parents
Adults with Down syndrome -- Baltimore: Paul H. Brookes Publishing, 2006.
Provides information and practical advice on topics such as social relationships, medical and mental health issues, post secondary education, sexuality, employment, recreation, and living arrangements.
FAM RJ 506 .D68 A38 2006
Adventures in the mainstream : coming of age with Down Syndrome / Palmer, Greg - - Bethesda, MD: Woodbine House, 2005.
FAM RJ 506 .D68 P347 2005
Babies with Down syndrome : a new parents' guide -- Bethesda, MD: Woodbine House, 2008.
The author suggests practices for raising and caring for children with Down syndrome from birth to age five. This new edition incorporates the latest scientific, medical, educational research, and practical information.
FAM RJ 506 .D68 B33 2008
Bébé arrive! : guide illustré pour parents d'un bébé présentant une trisomie 21 / Jacques, Line -- Québec: Lanaudiere - Association de parents d'enfant trisomique, 1998.
Ce guide vous renseigne sur la trisomie 21 et ses impacts sur le développement de l'enfant. Les informations qu'on retrouve visent à comprendre ce syndrome et ses manifestations. Pour les parents des bébés trisomiques de 0 à 2 ans.
FAM RJ 506 .D68 J32 1998
Big brother Dustin / Carter, Alder R. -- Morton Grove, Ill. Albert Whitman & Co. 1997.
Dustin, a little boy with Down syndrome, helps his parents and grandparents prepare for the birth of a baby while he tries to think of a name for his new sister. Appropriate for ages: 4-8 years.
FAM RJ 506 .D68 C37
Breastfeeding a baby with Down syndrome -- Chesterville, ON: La Leche League Canada, 1997.
FAM RJ 506 .D68 B73 BOX
Classroom language skills for children with Down Syndrome : a guide for parents and teachers / Kumin, Libby -- Bethesda, MD: Woodbine House, 2001.
An excellent guide for both parents and teachers, this book explains how to navigate school systems and classroom environments. Development of language skills in elementary school is also explored.
FAM RJ 506 .D68 K85
Deedah [DVD] / May, Brooke -- [Savannah, GA] Deedah Productions, 2009.
Deedah is the honest, heart warming and often humorous account of a seven-year old girl's relationship with her six-year old brother, who has Down Syndrome - or as he calls it 'up' syndrome.
FAM RJ 506 .D68 M39 2009
Discovery : pathways to better speech for child Down syndrome [DVD] / Schermerhorn, Will Blueberry Shoes Productions, 2005.
Includes information on such topics as communication milestones, hearing issues, sign language, making speech understandable, and building vocabulary.
FAM RJ 506 .D68 S332 2005
Down is up for Aaron Eagle : a mother's spiritual journey with Down syndrome / Noble, Vicki -- New York: HarperCollins, 1993.
FAM RJ 506 .D68 N635
The Down's syndrome handbook : a practical guide for parents and carers / Newton, Richard -- London: Vermilion, 2004.
FAM RJ 506 .D68 N48 2004
Down Syndrome : neurobehavioural specificity -- Chichester, UK: John Wiley & Sons Ltd, 2006.
Review of the research regarding specific developmental profile of strengths, weaknesses and needs of children and adults with Down syndrome.
FAM RJ 506 .D68 D69 2006
The Down syndrome nutrition handbook : a guide to promoting healthy lifestyles / Medlen, Joan E. Guthrie -- Bethesda, MD: Woodbine House, 2002.
FAM RJ 506 .D68 M44
Down Syndrome : the facts / Selikowitz, Mark -- Oxford: Oxford University Press, 1997.
FAM RJ 506 .D68 S45 1997
Down syndrome : the first 18 months [DVD] / Schermerhorn, Will Blueberry Shoes Productions, 2003.
The 'First 18 Months' is a reassuring and realistic introduction to the unique joys and challenges that children with Down syndrome bring to their families. Includes information on newborns, health concerns, therapies, and expectations.
FAM RJ 506 .D68 S33 2003
Down syndrome : when to worry about mental health and what to do about it! : a guide for parents and caregivers / Friedlander, Robin -- Kingston, NY: NADD Press, 2009.
This book offers practical advice on the assessment and treatment of mental health disorders in people with Down syndrome. It also provides practical advice for maintaining good mental health.
FAM RJ 506 .D68 F75 2009
Early communication skills for children with Down syndrome : a guide for parents and professionals / Kumin, Libby -- Bethesda, MD: Woodbine House, 2003.
FAM RJ 506 .D68 K86 2003
Early education for children with Down syndrome / Dmitriev, Valentine -- Austin, TX: Pro-ed, 2001.
A practical handbook to early education for children with Down syndrome, including diagrams, photos and exercises.
FAM RJ 506 .D68 D55 2001
Enseigner aux enfants atteints de la trisomie 21 : guide de strategies a l'intention des enseignantes et des enseignants des écoles élémentaires/primaires -- Vanier, ON: Centre franco-ontarien de ressources pédagogiques, 1998.
FAM RJ 506 .D68 T414
Eric's gift : a mother's discovery of unconditional love in the 47th chromosome / Thompson, Kimberly -- Tampa, FL: Eric's Gift Enterprises, 1998.
FAM RJ 506 .D68 T46
Fine motor skills in children with Down syndrome : a guide for parents and professionals / Bruni, Maryanne -- Bethesda, MD: Woodbine House, 2006.
The author presents a thorough overview of the building blocks of fine motor development and how the characteristics of Down syndrome can impact the acquisition and progression of fine motor skills.
FAM RJ 506 .D68 B78 2006
Gross motor skills in children with Down syndrome : a guide for parents and professionals / Winders, Patricia C. -- Bethesda, MD: Woodbine House, 1997.
An easy-to-understand explanation of motor development including the impact of temperament and the effect of physical and medical conditions associated with Down syndrome. Includes activities and photos.
FAM RJ 506 .D68 W56 1997
Improving the communication of people with Down Syndrome -- Baltimore, MD: Paul H. Brookes, 1999.
FAM RJ 506 .D68 I47
Je prépare mon avenir! : guide pour les parents d'un adolescent presentant une trisomie 21 / Jacques, Line -- Québec: Lanaudiere - Association de parents d'enfant trisomique, 2005.
FAM RJ 506 .D68 J326 2005
A moi de jouer! : guide pour les parents d'un enfant âgé de 6 à 12 ans présentant une trisomie 21 / Jacques, Line -- Québec: Lanaudiere - Association de parent d'enfant trisomique 21, 2002.
Ce guide met l'accent sur le développement de l'autonomie, la socialisation et les apprentissages à l'école des enfants trisomiques de 6 à 12 ans.
FAM RJ 506 .D68 J3268 2002
Mr. Blue Sky Bluesky [DVD}/ Magic Productions, 2008.
A heart-warming love story involving three childhood friends; two girls, one born with Down syndrome, and one boy, who all grow up fighting who they are inside, how they are perceived by society, and who they ultimately strive to become as individuals despite the obstacles that are inherently present.
FAM RJ 506 .D68 M55 2008 DVD
My sister is special / Jansen, Larry -- Cincinnati, Ohio: Standard Publishing, 1998.
A young boy Nathan describes his sister who has Down syndrome. Nathan understands that God made everyone special and his sister is special because she has Down syndrome. By caring for his sister who has Down syndrome, a little boy learns patience and compassion. Appropriate for ages: 4-8 years.
FAM RJ 506 .D68 J36
My son : living life with Down syndrome : first year of life / Sprague, Amy -- New York: iUniverse, Inc, 2005.
FAM RJ 506 .D68 S67 2005
A parent's guide to Down syndrome : toward a brighter future / Pueschel, Siegfried M. -- Baltimore, MD: Paul H. Brookes Publishing Co. 2001.
FAM RJ 506 .D68 P832 2001
Regarde, je grandis! : guide pour les parents d'un enfant age de 3 a 5 ans presenant une trisomie 21 / Jacques, Line -- Québec: Lanaudiere - Association de parents d'enfant trisomique, 2000.
FAM RJ 506 .D68 L56 2000
Russ and the apple tree surprise / Rickert, Janet Elizabeth -- Bethesda, MD: Woodbine House, 1999.
After Russ, a five-year-old with Down syndrome, picks a basket of apples and helps his mother and grandmother bake a pie, his grandfather invites him into the backyard for a surprise. Appropriate for ages:: 3-7 years.
FAM RJ 506 .D68 R53
Supporting children with Down's syndrome -- London: David Fulton Publishers, 2004.
FAM RJ 506 .D68 S9 2004
Teaching children with Down Syndrome : a resource guide for educators in elementary school -- Ottawa: Down Syndrome Association, 1998.
FAM RJ 506 .D68 T42
Teaching children with Down syndrome about their bodies, boundaries, and sexuality : a guide for parents and professionals / Couwenhoven, Terri -- Bethesda, MD: Woodbine House, 2007.
Drawing on her unique background as both a sexual educator and mother of a child with Down syndrome, the author blends factual information and practical ideas for teaching children with Down syndrome about their bodies, puberty, and sexuality.
FAM RJ 506 .D68 C68 2007
Teaching math to people with Down Syndrome and other hands-on learners - book 1 : basic survival skills / Horstmeier, DeAnna -- Bethesda, MD: Woodbine House, 2004.
FAM RJ 506 .D68 H67 2004
Teaching math to people with Down Syndrome and other hands-on learners - book 2 : advanced survival skills / Horstmeier, DeAnna -- Bethesda, MD: Woodbine House, 2008.
The author provides practical hands-on activities, games, props, and worksheets - to make learning math more concrete and tangible for children with Down syndrome, autism, or other cognitive disabilities.
FAM RJ 506 .D68 H68 2008
Teaching reading to children with Down syndrome : a guide for parents and teachers / Oelwein, Patricia L. -- Bethesda: Woodbine House, 1995.
Describes a reading program that ensures success. Presents imaginative and functional lessons which can be individualized for any child.
FAM RJ 506 .D68 O36
Trisomie 21 : aides et conseils / Cuilleret, Monique -- Paris: Masson, 2003.
FAM RJ 506 .D68 C84 2003
Understanding Down syndrome : an introduction for parents / Cunningham, Cliff -- Cambridge: Brookline Books, 1996.
Helps parents and beginning practitioners understand the characteristics of the condition, covers the latest methods of treatment, gives advice on patient care, and provides support.
FAM RJ 506 .D68 C86 1996
What did you say? : a guide to speech intelligibility in people with Down Syndrome [DVD] / Kumin, Libby Woodbine House, 2006.
This film helps parents and speech-language pathologists pinpoint specific problem areas to allow them to devise effective therapy plans for children and young adults with Down Syndrome.
FAM RJ 506 .D68 K8 2006
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Down Syndrome – U.S. National Library of Medicine
Down Syndrome – NOAH: New York Online Access to Health
Down Syndrome Association of Ontario
Canadian Down Syndrome Society
Family Matters Co-op Inc.
Down Syndrome Association – National Capital Region (DSA-NCR)
PO Box 8025 Stn T
Ottawa, ON K1G 3H6
Association du Syndrome de Down de l’Estrie
836, rue Saint-Charles
Sans frais: 1-877-569-8112
This guide provides medical material for information purposes only and is not intended to replace the advice of your physician. The information may not always apply to your individual situation.
The guide represents material available in the Family Resource Library collection at CHEO. It is not intended to be an exhaustive list. Your local public library may also be able to provide valuable information.
Last Updated: July 2011
Links Tested: July 2011