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Resources – Down Syndrome

Kaitlin Atkinson Family Resource Library

Children's Hospital of Eastern Ontario                                           Printer Friendly Version
401 Smyth Rd., Ottawa, ON K1H 8L1
613-738-3942
library@cheo.on.ca
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General Information and Resources for Families

Web Sites


Local Contacts

General Information and Resources for Families

Adventures in the mainstream: coming of age with Down Syndrome / Palmer, Greg -- Bethesda, MD: Woodbine House, 2005.
This book will help families confront many of their hopes and fears as they try and coax a child with a disability into the adult world and toward greater independence. Other parents will appreciate the author’s insights and struggles, as well as his ability to enjoy his son's strengths and foibles. This intelligent account also gives professionals a vital personal view of what families go through as they cope with their child's transition into adulthood.
FAM RJ 506 .D68 P347 2005

Babies with Down syndrome: a new parents' guide -- Bethesda, MD: Woodbine House, 2008. 
Covering the best practices for raising and caring for children with Down syndrome through age five, this book is invaluable to new parents who have welcomed a baby with Down syndrome into their lives. This new edition incorporates the latest scientific, medical, educational research, and practical
information available, as well as parents' suggestions and feedback.
FAM RJ 506 .D68 B33 2008

Bébé arrive!: guide illustré pour parents d'un bébé présentant une trisomie 21 / Jacques, Line -- Québec: Lanaudiere - Association de parents d'enfant trisomique, 1998.
Ce guide vous renseigne sur la trisomie 21 et ses impacts sur le développement de l'enfant. Les informations qu'on retrouve visent à comprendre ce syndrome et ses manifestations. Pour les parents des bébés trisomiques de 0 à 2 ans.
FAM RJ 506 .D68 J32 1998

Big brother Dustin / Carter, Alder R. -- Morton Grove, IL: Albert Whitman & Co. 1997.
Dustin, a little boy with Down syndrome, helps his parents and grandparents prepare for the birth of a baby while he tries to think of a name for his new sister. Appropriate for ages: 4-8 years.
FAM RJ 506 .D68 C37

Breastfeeding a baby with Down syndrome -- Chesterville, ON: La Leche League Canada, 1997.
This book provides education and support for the mother who is breastfeeding a baby with Down syndrome.
FAM RJ 506 .D68 B73 BOX

Classroom language skills for children with Down Syndrome: a guide for parents and teachers / Kumin, Libby -- Bethesda, MD: Woodbine House, 2001.
An excellent guide for both parents and teachers, this book explains how to navigate school systems and classroom environments. Development of language skills in elementary school is also explored.
FAM RJ 506 .D68 K85

Deedah [DVD] / May, Brooke -- [Savannah, GA] Deedah Productions, 2009.
Deedah is the honest, heart warming and often humorous account of a seven-year old girl's relationship with her six-year old brother, who has Down Syndrome - or as he calls it 'up' syndrome.
FAM RJ 506 .D68 M39 2009

Discovery: pathways to better speech for child Down syndrome [DVD] / Schermerhorn, Will -- Blueberry Shoes Productions, 2005.
Includes information on such topics as communication milestones, hearing issues, sign language, making speech understandable, and building vocabulary.
FAM RJ 506 .D68 S332 2005

The Down's syndrome handbook: a practical guide for parents and carers / Newton, Richard -- London: Vermilion, 2004.
This comprehensive handbook offers help and advice to all parents and carers of children with Down's syndrome, and shows them how to help their children flourish and reach their full potential.
FAM RJ 506 .D68 N48 2004

Down Syndrome: neurobehavioural specificity -- Chichester, UK: John Wiley & Sons Ltd, 2006.
Review of the research regarding specific developmental profile of strengths, weaknesses and needs of children and adults with Down syndrome.
FAM RJ 506 .D68 D69 2006

The Down syndrome nutrition handbook: a guide to promoting healthy lifestyles / Medlen, Joan E. Guthrie -- Bethesda, MD: Woodbine House, 2002.
This book is organized into four sections: Building Healthy Attitudes, Nutrition-Related Concerns for People with Down syndrome, Teaching Healthy Choices to Encourage Healthy Lifestyles, and Learning Activities.  There is also an extensive appendix with additional information, including a diabetes care plan, high-fibre diet, growth charts, activity ideas, recipe template, and food-safety checklist.
FAM RJ 506 .D68 M44

Down syndrome: the first 18 months [DVD] / Schermerhorn, Will -- Blueberry Shoes Productions, 2003.
The 'First 18 Months' is a reassuring and realistic introduction to the unique joys and challenges that children with Down syndrome bring to their families. Includes information on newborns, health concerns, therapies, and expectations.
FAM RJ 506 .D68 S33 2003

Down syndrome: when to worry about mental health and what to do about it!: a guide for parents and caregivers / Friedlander, Robin -- Kingston, NY: NADD Press, 2009.
This book offers practical advice on the assessment and treatment of mental health disorders in people with Down syndrome. It also provides practical advice for maintaining good mental health.
FAM RJ 506 .D68 F75 2009

Early communication skills for children with Down syndrome: a guide for parents and professionals / Kumin, Libby -- Bethesda, MD: Woodbine House, 2003.
This book offers parents a wealth of information on intelligibility issues, hearing loss, apraxia (difficulty planning oral-motor movements), and other factors that affect communication for children with Down syndrome. It explains how to prepare for and understand the results of a speech- language assessment, and goes on to describe what to expect in the years ahead when a child enters elementary school.
FAM RJ 506 .D68 K86 2003

Early education for children with Down syndrome / Dmitriev, Valentine -- Austin, TX: Pro-ed, 2001.
A practical handbook to early education for children with Down syndrome, including diagrams, photos and exercises.
FAM RJ 506 .D68 D55 2001

Eric's gift: a mother's discovery of unconditional love in the 47th chromosome / Thompson, Kimberly -- Tampa, FL: Eric's Gift Enterprises, 1998.
Author Kimberly Thompson chronicles her first two years as the mother of a child with Down syndrome, sharing the fear, anger, happiness and love she experienced.
FAM RJ 506 .D68 T46

Fine motor skills in children with Down syndrome: a guide for parents and professionals / Bruni, Maryanne -- Bethesda, MD: Woodbine House, 2006.
The author presents a thorough overview of the building blocks of fine motor development and how the characteristics of Down syndrome can impact the acquisition and progression of fine motor skills.
FAM RJ 506 .D68 B78 2006

Gross motor skills in children with Down syndrome: a guide for parents and professionals / Winders, Patricia C. -- Bethesda, MD: Woodbine House, 1997.
An easy-to-understand explanation of motor development including the impact of temperament and the effect of physical and medical conditions associated with Down syndrome. Includes activities and photos.
FAM RJ 506 .D68 W56 1997

Improving the communication of people with Down Syndrome -- Baltimore, MD: Paul H. Brookes, 1999.
This book provides a framework for assessing and treating speech, language, and communication problems in children and adults with Down syndrome. It offers valuable guidelines for assessing comprehension and production abilities, promoting language learning, and alleviating communication difficulties.
FAM RJ 506 .D68 I47

Je prépare mon avenir!: guide pour les parents d'un adolescent presentant une trisomie 21 / Jacques, Line -- Québec: Lanaudiere - Association de parents d'enfant trisomique, 2005.
FAM RJ 506 .D68 J326 2005

A moi de jouer!: guide pour les parents d'un enfant âgé de 6 à 12 ans présentant une trisomie 21 / Jacques, Line -- Québec: Lanaudiere - Association de parent d'enfant trisomique 21, 2002.
Ce guide met l'accent sur le développement de l'autonomie, la socialisation et les apprentissages à l'école des enfants trisomiques de 6 à 12 ans.
FAM RJ 506 .D68 J3268 2002

Mr. Blue Sky Bluesky [DVD] / -- Magic Productions, 2008.
A heart-warming love story involving three childhood friends; two girls, one born with Down syndrome, and one boy, who all grow up fighting who they are inside, how they are perceived by society, and who they ultimately strive to become as individuals despite the obstacles that are inherently present.
FAM RJ 506 .D68 M55 2008 DVD

My sister is special / Jansen, Larry -- Cincinnati, OH: Standard Publishing, 1998.
A young boy Nathan describes his sister who has Down syndrome. Nathan understands that God made everyone special and his sister is special because she has Down syndrome. By caring for his sister who has Down syndrome, a little boy learns patience and compassion. Appropriate for ages: 4-8 years.
FAM RJ 506 .D68 J36

A parent's guide to Down syndrome: toward a brighter future / Pueschel, Siegfried M. -- Baltimore, MD: Paul H. Brookes Publishing Co. 2001.
This text teaches not just what to expect as your child with Down syndrome grows but what you can hope for in terms of health, schooling, and your child's life in the community.  It includes reassuring guidance, and straightforward explanations.
FAM RJ 506 .D68 P832 2001

Regarde, je grandis!: guide pour les parents d'un enfant age de 3 a 5 ans presenant une trisomie 21 / Jacques, Line -- Québec: Lanaudiere - Association de parents d'enfant trisomique, 2000.
FAM RJ 506 .D68 L56 2000

Russ and the apple tree surprise / Rickert, Janet Elizabeth -- Bethesda, MD: Woodbine House, 1999.
After Russ, a five-year-old with Down syndrome, picks a basket of apples and helps his mother and grandmother bake a pie, his grandfather invites him into the backyard for a surprise. Appropriate for ages: 3-7 years.
FAM RJ 506 .D68 R53

Supporting children with Down's syndrome -- London: David Fulton Publishers, 2004.
This book contains vital information you need to know about Down's syndrome, which includes definition of Down's syndrome and its educational implications and teaching strategies to meet different learning styles.
FAM RJ 506 .D68 S9 2004

Teaching children with Down syndrome about their bodies, boundaries, and sexuality: a guide for parents and professionals / Couwenhoven, Terri -- Bethesda, MD: Woodbine House, 2007.
Drawing on her unique background as both a sexual educator and mother of a child with Down syndrome, the author blends factual information and practical ideas for teaching children with Down syndrome about their bodies, puberty, and sexuality.
FAM RJ 506 .D68 C68 2007

Teaching math to people with Down Syndrome and other hands-on learners - book 1: basic survival skills / Horstmeier, DeAnna -- Bethesda, MD: Woodbine House, 2004.
This guide gives parents and teachers high-interest, hands-on strategies and ideas for teaching math to learners of all ages.
FAM RJ 506 .D68 H67 2004

Teaching math to people with Down Syndrome and other hands-on learners - book 2: advanced survival skills / Horstmeier, DeAnna -- Bethesda, MD: Woodbine House, 2008.
The author provides practical hands-on activities, games, props, and worksheets - to make learning math more concrete and tangible for children with Down syndrome, autism, or other cognitive disabilities.
FAM RJ 506 .D68 H68 2008

Teaching reading to children with Down syndrome : a guide for parents and teachers / Oelwein, Patricia L. -- Bethesda: Woodbine House, 1995.
Describes a reading program that ensures success. Presents imaginative and functional lessons which can be individualized for any child.
FAM RJ 506 .D68 O36

Trisomie 21: aides et conseils / Cuilleret, Monique -- Paris: Masson, 2003.
Riche de l'expérience de l'auteur qui a consacré sa carrière au suivi des personnes atteintes de trisomie 21, ce livre offre une vision exhaustive de l'évolution et des progrès de la prise en charge de ces patients.
FAM RJ 506 .D68 C84 2003

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Web Sites

Down Syndrome – From the US National Library of Medicine 

Down Syndrome Association of Ontario

Canadian Down Syndrome Society / Société canadienne du syndrome de Down

Family Matters Co-op Inc.

National Association for Down Syndrome

National Down Syndrome Society

Down Syndrome International


National Down Syndrome Congress

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Local Contacts

Down Syndrome Clinic - CHEO
401 Smyth Rd
Ottawa, ON K1H 8L1

Down Syndrome Association – National Capital Region / Association syndrome de Down région de la capitale nationale

PO Box 8025 Stn T
Ottawa, ON K1G 3H6
613-737-0658
info@dsancr.com

Association du Syndrome de Down de l’Estrie
836, rue Saint-Charles
Sherbrooke, QC J1H 4Z2
Téléphone: 819-569-8112
Sans frais: 1-877-569-8112
Télécopieur: 819-569-5144
asdesherbrooke@gmail.com

This guide provides medical material for information purposes only and is not intended to replace the advice of your physician. The information may not always apply to your individual situation.

The guide represents material available in the Family Resource Library collection at CHEO. It is not intended to be an exhaustive list. Your local public library may also be able to provide valuable information.


If you require materials in alternative formats, please contact the library at 613-737-7600 ext. 2157 or at library@cheo.on.ca.

Last Updated: January 2016
Links Tested: January 2016

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