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Resources – Epilepsy

Kaitlin Atkinson Family Resource Library

Children's Hospital of Eastern Ontario                                          Printer Friendly Version
401 Smyth Rd., Ottawa, ON K1H 8L1
613-738-3942
library@cheo.on.ca
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Resource List for Parents

Web Sites

Apps

Local Contacts

Resource List for Parents

100 questions & answers about your child's epilepsy / Singh, Anuradha. -- Sudbury, MA: Jones and Bartlett, 2009.
This book provides answers to questions about epilepsy diagnosis, treatment options, and management.  Written by a childhood epilepsy expert, along with contributions from parents and the children and adolescents themselves, this book is a resource for learning and coping with the medical and emotional effects on a child with epilepsy.
FAM RJ 496 .E6 S56 2009

The brainstorms family : epilepsy on our terms; stories by children with seizures and their parents
-- Philadelphia, PA: Lippincott-Raven, 2006.
Presents information about the condition of epilepsy, what it is like to have seizures, the different kinds of seizures, and the effects of epilepsy on the individual and the family. Appropriate for ages: 9-17 years.
FAM RJ 496 .E6 B734

Children with seizures : a guide for parents, teachers, and other professionals / Kutsher, Martin L. -- London: Jessica Kingsley Publishers, 2006.
This book takes an overview of epilepsy, looking at the medical concepts and terminology alongside some of the emotional and social issues that can make epilepsy a challenge to live with. Certain chapters in the book are specifically written for children to read with their parents (with guidance notes for parents outlined at the beginning of the chapter) and for teenagers to read themselves.
FAM RJ 496 .E6 K87 2006

Comprendre l'épilepsie : notions élémentaires sur l'épilepsie et les epilepsies / Dravet, Charlotte -- Montrouge, France: John Libbey Eurotext, 2005.
Cet ouvrage est destiné à toutes les personnes qui veulent mieux comprendre l'épilepsie, en particulier à celles qui en sont atteintes et à leur entourage. Son objectif est de rendre accessibles au grand public les mécanismes complexes, les causes, les différentes formes, les aspects psychologiques, les
traitements de cette maladie.
FAM RJ 496 .E6 D7 2005

Dotty the Dalmatian has epilepsy -- Gladstone, NJ: Tim Peters and Co. Inc. 1995.
This delightful story is about Dotty the Dalmatian who discovers she has epilepsy. At first, Dotty feels embarrassed and afraid. Once she accepts and learns how to control her seizures, she helps firefighters save lives.
FAM RJ 496 .E6 D67 1995

Epilepsy : a guide to balancing your life / Leppik, Ilo E. -- New York: Demos Medical Publishing, 2007.
Covers topics such as diagnosis, diet, pregnancy, driving, sports, medications and treatment options.
FAM RJ 496 .E6 L462 2007

Growing up with epilepsy : a practical guide for parents / Blackburn, Lynn Bennett -- New York: Demos Medical Publishing, 2003.
This book provides the tools you need to raise a child with epilepsy, to support his/her social development, provide effective discipline, and negotiate the educational system. Each stage in your child's life presents unique issues and problems, ranging from finding day care to school programming to driving. This book is organized so that you can go to the information that you need when you need it, returning for updates as your child grows and new issues emerge.
FAM RJ 496 .E6 B534 2003

Keto kid : helping your child succeed on the ketogenic diet / Snyder, Deborah -- New York: Demos Medical Publishing, 2007.
Includes recipes, strategies and advice to enable families to master this nutritional therapy.
FAM RJ 496 .E6 S69 2007

The ketogenic diet : a treatment for children and others with epilepsy -- New York: Demos, 2007.
The ketogenic diet has helped doctors treat difficult-to-control epileptic seizures in thousands of children. This fourth edition is extensively updated to reflect current advances in understanding how the diet works, how it should be used, and the future role of the diet as a treatment.
FAM RJ 496 .E6 F69 2007

Les epilepsies : questions-réponses, 12 témoignages, fiche pratique / Voss, Farah -- Paris: Editions du Dauphin, 2006.
L'auteur recueilli les témoignages de 12 personnes épileptiques. Ce livre les partage avec tous, les malades et ceux que l'épilepsie épargne, afin de rompre les soli­tudes et déraciner les idées fausses, afin d'informer pour vaincre les tabous.
FAM RJ 496 .E6 V6 2006

Plus de gym pour Danny / Young, Helen -- France: Flammarion, 2001.
L'histoire de Danny est celle d'un jeune sportif anglais qui souffre d'épilepsie et plus encore, des préjugés et des comportements entretenus par les adultes au sujet de sa maladie. Un récit bien mené, captivant, susceptible de faire disparaître les préjudices liés à l'épilepsie.
FAM RJ 496 .E6 Y6 2001

Sébastien le dalmatien est épileptique -- Gladstone, NJ: Tim Peters and Company Inc. 1995.
Cette charmante histoire est Sébastien le dalmatien qui découvre qu'elle est atteinte d'épilepsie.  Dans un premier temps, se sent gêné et Sébastien peur. Une fois, elle accepte et apprend à contrôler ses crises, elle aide les pompiers sauvent des vies.
FAM RJ 496 .E6 D6714 1995

Seizures and epilepsy in childhood [3rd ed.]: a guide / Freeman, John Mark. -- Baltimore, MD: Johns Hopkins University Press, 2002.
This book has been thoroughly revised and updated to reflect the latest approaches to the diagnosis and treatment of epilepsy in childhood, including the use of the ketogenic diet as a treatment for children who either do not respond to traditional drug therapy or who suffer intolerable side effects from medications.  The authors have also included a chapter addressing routine health care for children with epilepsy and a new chapter on complementary and alternative therapies.
FAM RJ 496 .E6 F74 2002

Taking seizure disorders to school : a story about epilepsy / Gosselin, Kim -- Valley Park, MO: Jayjo Books, 1996.
A book about epilepsy for children with epilepsy or children with friends or classmates who have epilepsy. Appropriate for ages: 5-10 years.
FAM RJ 496 .E6 G67

Your child and epilepsy : a guide to living well / Gumnit, Robert J. -- New York: Demos Vermande, 1995.
This book provides information to help parents understand their children’s' epilepsy, suggestions on how to evaluate health care, to find better care if necessary, and advice on how to help children with epilepsy to develop self-confidence and self-motivation.
FAM RJ 496 .E6 G85

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Web Sites

Epilepsy Ontario

Épilepsie Outaouais

Epilepsy Canada / Épilepsie Canada

Epilepsy Foundation

Epilepsy Ottawa-Carleton

Epilepsy – MedlinePlus from the US National Library of Medicine

Epilepsy Resource Centre - About Kids Health

Canadian Epilepsy Alliance / Alliance canadienne de l’épilepsie

What do you want to know about epilepsy? – Healthline

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Apps

Epilepsia App
● From Soda Virtual
● English, Portuguese
● Free
● Last updated March 2013
● From iTunes: The best treatment for epilepsy is the precise monitoring of the epileptic crisis. With this app it’s possible to register day and time of the seizures, the symptoms that follow, remedies that you are taking and even alarm to remember the time to do it. Functionality: seizures video record; registry of medicine used; alarm to remember the medicine time; registry of seizures; synchronized data of cloud (except  videos); seizure list; share information with your doctor.
● Available from iTunes

Epilepsy Storylines
● From Self Care Catalysts
● English
● Free
● Last updated Jan 2016
● From Google Play: Now it’s easy to record your symptoms, seizure activity, moods, medication, and more. Choose what you want to track to build your own health story.  This enables you to learn more about your health, and share more with your doctor, so you both see the full story.
● Available from Google Play and iTunes


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Local Contacts

Neurology Clinic - CHEO
Clinic B
401 Smyth Road
Ottawa, ON K1H 8L1
613-737-7600
Physician’s referral required

Epilepsy Ottawa-Carleton
207-211 Bronson Ave.
Ottawa, ON K1R 6H5
613-594-9255
info@epilepsyottawa.ca

Epilepsie Outaouais
115, boul. Sacré-Cœur, bureau 109
Hull, QC
J8X 1C5
819-595-3331
info@EpilepsieOutaouais.org   
 

 

This guide provides medical material for informational purposes only and is not intended to replace the advice of your physician. The information may not always apply to your individual situation.

The guide represents material only available in the Family Resource Library collection at CHEO. It is not intended to be an exhaustive list. Your local public library may also be able to provide valuable information.

If you require materials in alternative formats, please contact the library at 613-737-7600 ext. 2157 or at library@cheo.on.ca.


Last Updated: January 2016
Links Tested: January 2016

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