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Resources – Heart Diseases and Disorders

Kaitlin Atkinson Family Resource Library
Children's Hospital of Eastern Ontario                                                     Printer Friendly Version
401 Smyth Rd., Ottawa, ON K1H 8L1
613-738-3942
library@cheo.on.ca
Follow us @CHEOfrl


Resource List for Families

Web Sites

Local Contacts

Resource List for Families

After the Fontan: how Fontan survivors fare in the long run / Sivasubramanian, S -- S. Sivasubramanian, 1999.
This short report of published outcome data after the Fontan operation is presented in simple non-technical language easily understood by parents, students and non-medical people.
FAM RJ 424 .S58


Cardiac kids / Elder, Vicci -- Dayton: Dayton Area Heart and Cancer Association, 1994.
Describes medical tests a child will experience after being diagnosed with a heart problem. It includes information on emotional impact on siblings and family members, as well as helpful suggestions for parents.
FAM RJ 426 .C64 E43


Heart caths for kids: a book for parents of children needing heart catheterization / Oates, Kerri -- Atlanta, GA: Pritchett & Hull, 2001.
This step-by-step guide tells parents about every aspect of the cath procedure from preparing for the cath to what to do afterwards. More involved definitions and explanations of specific cath procedures are covered in an easy-to-understand way in the appendix. This comforting book can help parents during a very tough time.
FAM RJ 423.5 .C36 O3 2001


Heart defects in children: what every parent should know / Wild, Cheryl -- Minneapolis: Chronimed Publishing, 1999.
This book was written so that parents can have all the information they need, including: identifying the type of defect; a review of the most common treatments in use; an overview of the tests used for diagnosis and treatment; what to ask the doctor; and how to prepare for your child's surgery. A unique feature of this book is "Draw-On Hearts" -- illustrations that enable physicians to draw the exact structure of the child's defect and repair.
FAM RJ 421 .W53


The heart: our circulatory system / Simon, Seymour -- New York: Morrow, 1996.
This informative, colorful book describes the heart, blood, and other parts of the body's circulatory system and explains how each component functions.
FAM QP 111.6 .S48


The heart of a child: what families need to know about heart disorders in children / Neill, Catherine A. -- Baltimore, MD: Johns Hopkins University Press, 2001.
Written for parents whose child has a heart disorder, this book provides up-to-date and reliable information from medical experts on children's heart problems.
FAM RJ 426 .C64 N45 2001

Heart smart / Huesman, Tony -- Dayton: TenderHearts, 1994.
This book is written for young children to teach them that good heart health begins at an early age. It emphasizes the importance of diet, exercise, and not smoking.
FAM RJ 421 .H83


Hypertrophic cardiomyopathy: for patients, their families, and interested physicians / Maron, Barry J -- Marmock, NY: Futura Media Services, 2001.
In clear and straightforward language, this book explains what hypertrophic cardiomyopathy is, what the symptoms are, and how it can be treated, as well as reviewing the genetic implications and offering candid lifestyle advice.
FAM RJ 426 .C64 M37


Hypoplastic left heart syndrome: a handbook for parents / Jaworski, Anna -- Mound, TX: Baby Hearts Press, 1995.
In this book you’ll find out what to expect when your child has open heart surgery and how to live with a child with a heart defect. It is written by a parent, for parents of children with severe congenital heart defects.
FAM RJ 426 .C64 J38

Matty's heart: a child's and parent's guide to open heart surgery / Clabough, Jean -- San Bernardino, CA: Aletheia Publishing, 1995.
Mr. Pump tells the story of Matthew Lewis going through heart surgery and explains all the pre and post op procedures. A narrative boxed section is on each page, explaining the procedures in layman terms for older children & parents. The goal of this book is to prepare children and parents for heart surgery.
FAM RJ 424 .C52

Matty's heart cath: story and coloring book / Clabough, Jean -- San Bernardino, CA: Aletheia Pub., 1995. 
This book explains the heart catheterization procedure to children.
FAM RJ 423.5 .C36 C52


The Mayo Clinic heart book -- New York: William Morrow, 2000.
This book is a fully updated edition of the classic guide to cardiovascular disease, which incorporates the collective knowledge of over 125 Mayo specialists in cardiology, preventive medicine, surgery, endocrinology, and dietetics.
FAM RJ 421 M4 2000


The paediatric cardiac surgical patient / McDonnell, Noelene -- 1999
FAM RJ 424 .M32

The parent's guide to children's congenital heart defects: what they are, how to treat them,  how to cope with them / Kramer, Gerri Freid -- New York: Three Rivers Press, 2001.
Written by two parents of children with CHD in an easy-to-follow question-and-answer format, this guide provides information on diagnosis, treatment options, surgery, aftercare, and growing up with CHD, along with the voices of dozens of other parents who have lived through CHD and know what you’re going through. In these pages, you’ll find the information, empathy, and support you need to care for your child and thrive together.
FAM RJ 426 .C64 K73

Sarah's story / Winkel, Netty. -- [Queensland, Aust.]: The Queensland Centre for Congenital Heart Disease, 2000.
Born with a congenital heart defect, Sarah goes to hospital for an operation. This book explains to children what happens before and after a heart operation.
FAM RJ 426 .C64 W56

There are some things more important than baseball / Huesman, Tony. -- Dayton, OH: TenderHearts, 1996.
Robby learns all about the heart and heart attacks when his friend’s grandfather is hospitalized after having a heart attack. Appropriate for ages 6-10 years.
FAM RJ 421 .H84


To mend a broken heart: pediatric heart surgery
-- Atlanta: Pritchett & Hull, 1998.

Simply written and illustrated, this interactive booklet explains a child’s heart surgery when there is a congenital heart defect. It covers: types of surgery; what is done before surgery; going to the hospital; what happens during surgery; and what to expect afterwards. This guide will help parents get ready to take a strong, active role in their child’s healing and recovery.
FAM RJ 424 .T6

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Web Sites

Cardiology - CHEO / Cardiologie - CHEO

Exploring the heart – Sick Kids - Hospital for Sick Children / Explorons le Coeur – Sick Kids

The Heart Institute Encyclopedia – Cincinnati Children's Hospital Medical Center

Kids with Heart - National Association for Children's Heart Disorders

En Cœur: Fondation québécoise pour les enfants malades du cœur

Association Nationale des Cardiaques Congénitaux - France

Heart and Stroke Foundation / Fondation des maladies de cœur – Ontario

Living With a Congenital Heart Defect – National Heart, Lung and Blood Institute

Congenital Heart Defects – Medline Plus from the US National Library of Medicine

World Heart Federation

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Local Contacts

Cardiology Clinic - CHEO / Clinique de cardiologie - CHEO
401 Smyth Rd
Ottawa, ON K1H 8L1
613-737-7600
Doctor’s Referral Required / par les médecins renvoi

Heart and Stroke Foundation of Canada – Ottawa Office / Fondation des maladies de cœur - Bureau de Ottawa
1101 Prince of Wales Dr., Suite 100
Ottawa, ON K2C 3W7
613-727-5060

Fondation des maladies de cœur - Outaouais
109 Wright Street, Suite 007
Hull, QC J8X 2G7
819-771-8595

Canadian Congenital Heart Alliance - Eastern Ontario Chapter
EasternOntario@cchaforlife.org

This guide provides medical material for information purposes only and is not intended to replace the advice of your physician. The information may not always apply to your individual situation.

The guide represents material available in the Family Resource Library collection at CHEO. It is not intended to be an exhaustive list. Your local public library may also be able to provide valuable information.


If you require materials in alternative formats, please contact the library at 613-737-7600 ext. 2157 or at library@cheo.on.ca.

Last Updated: February 2016
Links Tested: February 2016

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