Kaitlin Atkinson Family Resource Library
Children's Hospital of Eastern Ontario Printer Friendly Version
401 Smyth Rd., Ottawa, ON K1H 8L1
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Resource List for Parents
Resource List for Siblings of Special Needs
Resource List for Parents
Breakthrough parenting for children with special needs: raising the bar of expectations / Winter, Judy. -- San Francisco, CA: Jossey-Bass, 2006.
This book provides detailed information on how to let go of the “perfect-baby” dream, face and resolve grief, avoid the no-false-hope syndrome, access early intervention services, and avoid the use of limiting and outdated labels. Also included are specific guidelines for working with professionals, understanding the law and inclusion, planning for the future, and insightful interviews.
FAM HV 888 .W56 2006
Bridging the gap: raising a child with nonverbal learning disorder / Whitney, Rondalyn Varney -- New York: Perigree, 2002.
This book focuses on NLD as a unique learning style, rather than a disability, offering a brilliantly realized account of a day in the life of a child with NLD. Other chapters address specific problems, including finding the right school, telling your child about the diagnosis, teaching social skills, negotiating the maze of interventions, and caring for self and spouse. Each chapter balances vivid case examples with thoughtful strategies.
FAM RJ 496 .L4 W48
Building a joyful life with your child who has special needs / Whiteman, Nancy J. -- London: Jessica Kingsley, 2007.
This book explores practical ways parents can face the challenges of caring for children with physical, developmental and mental health disorders. Chapters deal with key topics such as coping with a diagnosis, discussing the child's needs with teachers, explaining a child's differences to their peers and building support systems for themselves and their children.
FAM HQ 759.913 .W54 2007
Children with complex and continuing health needs: the experiences of children, families and care staff / Hewitt-Taylor, Jaqui -- London: Jessica Kingsley Publishers, 2008.
The author focuses on the real life experiences of children and their families and provides valuable insight into living with complex and continuing health needs.
FAM RJ 380 .H49 2008
Children with disabilities -- Baltimore, MD: Paul H. Brookes, 2007.
This comprehensive text covers all of the developmental, clinical, educational, family, and intervention issues, and also includes student-friendly features: chapter objectives, vivid vignettes, a glossary of key terms, more than 200 helpful illustrations, and extensive appendices about cognitive testing and screening, medications, resources, syndromes, and inborn errors of metabolism.
FAM HV 888 .B38 2007
Dialogue avec les enfants handicapés / Saint-Pierre, Cecile -- Sherbrooke, QC: Le Productions GGC, 1996.
Partant de relations de rencontres avec les enfants handicapés, Cécile Saint-Pierre montre que, lorsque l'intervenant a retrouvé le dialogue au niveau des personnes, ce qui se passe et se développe dans la classe de sujets handicapés est comparable à ce qui s'exprime chez les autres enfants.
FAM HV 888 .S34
Don't call me special: a first look at disability / Thomas, Pat -- Hauppauge, NY: Barron's Educational Series, 2002.
This delightful picture book explores questions and concerns about physical disabilities in a simple and reassuring way. Younger children can find out about individual disabilities, special equipment that is available to help the disabled, and how people of all ages can deal with disabilities and live happy and full lives.
FAM HV 888 .T56 2002
Élever un enfant handicapé: tome 1: de la naissance aux premiers acquis scolaires / Della-Courtiade, Claude -- Paris: EME editions sociales francaises, 1998.
Ce livre a pour vocation d'aider les parents d'enfants handicapés à reculer les limites du handicap, depuis la naissance jusqu'aux premiers acquis scolaires. L'auteur, après avoir longuement travaillé dans des établissements spécialisés pour handicapés, partage son expérience et donne des conseils clairs et précis pour stimuler les enfants dans les situations concrètes de la vie quotidienne : alimentation, toilette, habillage, apprentissage du langage, de la lecture.
FAM HV 888 .D44 1998
Un enfant à découvrir: au-delà de la déficience physique et intellectuelle / Ferland, Francine --Montréal: Éditions de l’Hôpital Sainte Justine, 2001.
Destiné aussi bien aux parents qu'aux intervenants, le livre contient des notions sur le développement, des propositions d'activités pour éveiller la curiosité de l'enfant, lui apprendre à communiquer et à développer son sens de l'humour.
FAM HV 888 .F47
Les enfants différents: les comprendre pour mieux les aider / Ndayisaba, Joseph -- Montreal: Editions Logiques, 1999.
Les auteurs proposent une réflexion en profondeur sur divers aspects de l'enfant différent : les types de handicaps; la mésadaptation et l'inadaptation, les enfants traumatisés et les troubles de la communication orale ou écrite ; critères psychoaffectifs et rôle de la scolarisation ; et conseils pour aider ces enfants à devenir plus autonomes. Les enseignants, les parents, les psychoéducateurs et tous ceux qui œuvrent auprès des enfants trouveront dans cet ouvrage une information critique des plus utiles.
FAM HV 888 .N33
Exceptional children - ordinary schools: getting the education you want for your special needs child / Forman, Norm -- Markham, ON: Fitzhenry & Whiteside, 2004.
This book addresses the educational concerns and needs of children with learning disabilities and other special needs. It's a comprehensive guide for parents seeking to improve the lives of their child's education, as well as resources on how to become a successful advocate for their needs.
FAM LC 3969 .F67 2004
Extraordinary friends / Rogers, Fred -- New York: Putnam, c2000.
How do you get to know someone in a wheelchair? Sometimes it's hard to know where to begin. In his characteristically wise and gentle way, Mister Rogers challenges the stereotypes that often plague children with special needs and celebrates six children who are extraordinary friends.
FAM HV 888 .R63
Far from the tree: parents, children and the search for identity / Solomon, Andrew. -- New York: Scribner, 2012.
Solomon's startling proposition is that diversity is what unites us all. He writes about families coping with deafness, dwarfism, Down syndrome, autism, schizophrenia, multiple severe disabilities, with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, as are the triumphs of love Solomon documents in every chapter.
FAM HV 888.5 .S65 2012
Financial assistance measures for families with disabled child -- Quebec: Ministère de la santé et des services sociaux, 2001.
This guide provides information for families with a disabled child on the eligibility for provincial and federal tax credits, as well as specific programs for those living in Quebec and for persons with disabilities and their families.
FAM HV 1559 .C32 Q6413
La grande journée: les enfants polyhandicapés / Fonteneau, Jean-Louis -- Paris: Doin, 1997.
Cette bande dessinée suit Élodie, une jeune fille, qui est polyhandicapée, et sa famille. Comprend des questions et réponses à la fin. Pour les enfants de 8 à 17 ans.
FAM HV 888 .G72
Head cases: stories of brain injury and its aftermath / Mason, Michael Paul. -- New York: Farrar, Straus and Giroux, 2008.
In this book, we encounter survivors of brain injuries as they struggle to map and make sense of the new worlds they inhabit. Underlying each of these survivors’ stories is an exploration of the brain and its mysteries. When injured, the brain must figure out how to heal itself, reorganizing its physiology in order to do the job.
FAM RJ 496 .B7 M377 2008
I openers: parents ask questions about sexuality and children with developmental disabilities / Hingsburger, Dave -- Vancouver, B.C. Family Support Institute Press, 1993.
This book offers insightful and intelligent answers to real-life questions from parents, with the goal of teaching children with developmental disabilities about sexuality. The author has worked extensively with people with disabilities and he treats this subject not only with sensitivity but with good humour.
FAM HQ 57.2 .H56
Janet's got her period: planning for self-care in menstruation for girls and young women with special learning needs / Gray, Judi. -- Carlton, Australia: Social Biology Resources Centre, 1990.
This resource kit informs women and young girls with intellectual or physical disabilities about menstrual management and self-care. Using graphic depictions, the DVD and accompanying booklet give step-by-step instructions on what young women should know about menstruation.
FAM HQ 53 .G72 1990
Keeping Katherine: a mother's journey to acceptance / Zimmermann, Susan -- New York: Three Rivers Press, 2004.
A story of personal transformation that reminds us that it isn’t what happens to us that shapes our humanity, but how we react, Keeping Katherine shows the unconditional love that exists in families and the gifts the profoundly disabled can offer to those who try to understand them.
FAM HQ 759.913 .Z56 2004
Kids in the syndrome mix of ADHD, LD, Asperger's, Tourettes's, Bipolar, & more: the one stop guide for parents, teachers and other professionals / Kutscher, Martin L. -- London: Jessica Kinsley, 2005.
This book provides accessible information on causes, symptoms, interactions with other conditions, and treatments. The author presents effective behavioral strategies for responding to children who display traits of these disorders - whether at home, at school, or in other settings - along with case vignettes and practical tips.
FAM RJ 506 .B44 K88 2006
Laying community foundations for your child with a disability: how to establish relationships that will support our child after you're gone / Stengle, Linda J. -- Bethesda, MD: Woodbine House, 1996.
This book emphasizes the need to start to build a caring community of people who will provide emotional support and guidance for your child after your death. Chapters discuss: how to assess your child's needs; how to foster long-term relationships for your child; where to look for relationships; how to ask people for a commitment; and independent living arrangements.
FAM HV 888 .S73
Married with special needs children: a couple's guide to keeping connected / Marshak. Laura E. -- Bethesda, MD: Woodbine House, 2007.
Eases concerns and addresses a broad range of marital and parenting issues that may be present when a couple has a child with a disability.
FAM HQ 759.913 .M27 2006
More than a mom: living a full and balanced life when your child has special needs / Baskin, Amy -- Bethesda, MD: Woodbine House, 2006.
A book for mothers whose children have developmental or physical disabilities, mental health or learning issues, or chronic medical conditions. This book is designed to help you cope, adjust, and find the inspiration to make your daily life easier and more fulfilling.
FAM HQ 759.913 .B37 2006
Nathalie's story: anatomy of a stroke at fifteen / Aubertin, Nathalie -- Victoria, BC: Victoria Bindery, 2007.
A quadriplegic and speech impaired, Nathalie hopes to help others who have also suffered a debilitating stroke deal with daily life and never give up hope.
FAM RJ 496 .B7 A92 2007
Optimizing care for young children with special health care needs: knowledge and strategies for navigating the system -- Baltimore, MD: Paul Brookes Publishing, 2007.
Ideal for anyone who directly assists or works with families of children with special health care needs and for parents themselves, this book explains how to effectively and efficiently manage the health care system and optimize care for children with any kind of special health care need.
FAM HV 888 .O68 2007
Ordinary families, special children: a systems approach to childhood disability / Seligman, Milton -- New York: The Guilford Press 2007.
This book offers a multi-systems perspective on childhood disability and its effects on family life. It discusses theory and research as well as practical intervention strategies and techniques.
FAM HV 888.5 S45 2007
Parenting children with health issues: essential tools, tips, and tactics for raising kids with chronic illness, medical conditions and special healthcare needs / Cline, Foster. -- Golden, CO: Love & Logic Press, 2007.
Offers parents of children with chronic health issues practical strategies and suggestions to help them cope with their child's condition and the constant physical and emotional challenges they may face.
FAM RJ 380 .C62 2007
Parenting your complex child: become a powerful advocate for the autistic, Down syndrome, PDD, bipolar, and other special-needs child / Morgan, Peggy Lou -- New York, NY: AMACOM, 2006.
This guide presents a practical system for combining information and observations about your child into a cohesive plan for his or her daily life, and for documenting and communicating the child’s individual needs in a way that guarantees attention and action. The book offers the professional and personal wisdom the author has gained through a life of advocating for special needs children, including her own.
FAM RJ 506 .B44 M73 2006
Raising a kid with special needs: the complete Canadian guide / Bendall, Lisa -- Toronto: Key Porter Books Ltd, 2008.
This is a comprehensive and friendly guide for families who are raising a special needs child. In clear, friendly language, the author presents a step-by- step guide to getting past the ‘special needs’ and on to the business of living. From health advice to school savvy, from financial tips to advocacy know-how, from focusing on family to facing the future, this book will guide parents through all aspects of parenting a child who has physical, developmental, sensory, or learning disabilities.
FAM HV 888 .B46 2008
Raising and educating a deaf child / Marschark, Marc -- New York: Oxford University Press, 2007.
This second edition offers a readable, comprehensive summary of everything a parent or teacher would want to know about raising and educating a deaf child. It covers topics ranging from what it means to be deaf to the many ways that the environments of home and school can influence a deaf child's chances for success in academic and social circles. The new edition provides expanded coverage of cochlear implants, spoken language, mental health, and educational issues relating to deaf children enrolled in integrated and separate settings.
FAM HV 2391 .M26 2007
Raising NLD superstars: what families with nonverbal learning disabilities need to know about nurturing confident, competent kids / Whitney, Rondalyn Varney -- New York, 2004.
Raising NLD Superstars is essential reading for all those who come in to contact with children with non-verbal learning disorders (NLD). Instead of insisting upon the one size fits all model of intervention, the author focuses on the individual nature of NLD children and offers practical, adaptable advice that will help them find their place both in the family and in wider social groups.
FAM RJ 496 .L4 R82 2004
Reflections from a different journey: what adults with disabilities wish all parents knew -- New York: McGraw-Hill, 2004.
This book presents 40 stories by successful adults who grew up with disabilities. They provide insights into what it is like to persevere in the face of community prejudices, and what it takes for families and children with disabilities to work together toward fulfillment.
FAM HQ 759.913 .R43 2004
Sexuality: your sons and daughters with intellectual disabilities / Schwier, Karin Melberg -- Baltimore, MD: Paul H. Brookes, 2000.
This book helps parents interact with their children in a way that increases self-esteem, encourages appropriate behavior, empowers them to recognize and respond to abuse, and enables them to develop lifelong relationships.
FAM HQ 54.3 .S38 2000
Steps to independence: teaching everyday skills to children with special needs / Baker, Bruce L. -- Baltimore, MD: Paul H. Brookes Publishing, 2004.
Proven strategies for teaching life skills to children from age 3 through young adulthood. Provides step-by-step guide for teaching seven types of skills.
FAM HV 891 .B16 2004
Troubles envahissants du développement: guide de stratégies psychoéducatives: enfants verbaux -- Montréal: Éditions du CHU Sainte-Justine, 2008.
Ce guide s'adresse aux parents et aux professionnels engagés auprès d'enfants âgés de 2 à 8 ans, atteints de troubles envahissants du développement (TED). Il fait un point sur les caractéristiques cognitives des TED, puis propose des moyens d'intervention adaptés à chaque enfant comme la communication, les interactions sociales et les comportements inappropriés.
FAM LC 4704 .T762 2006
Understanding motor skills in children with Dyspraxia, ADHD, Autism, and other learning disabilities: a guide to improving coordination / Kurtz, Lisa A. -- London: Jessica Kingsley Publishers, 2008.
The author explains how to recognize normal and abnormal motor development, when and how to seek help and includes specific teaching strategies to help children with coordination difficulties succeed in the classroom, playground and home.
FAM RJ 496 .M68 K877 2008
The ultimate guide to sex and disability: for all of us who live with disabilities, chronic pain, and illness / Kaufman, Miriam -- San Francisco, CA:
Cleis Press, 2003.
This complete sex guide is for people who live with disabilities, pain, illness, or chronic conditions. Useful for absolutely everyone, regardless of age, gender, or sexual orientation, the book addresses a wide range of disabilities — from chronic fatigue, back pain, and asthma to spinal cord injury, hearing and visual impairment, multiple sclerosis, and more. It provides readers with encouragement, support, and all the information they need to create a sex life that works for them.
FAM HQ 54.2 .K38 2003
Yoga for the special child: a therapeutic approach for infants and children with Down Syndrome, cerebral palsy, and learning disabilities / Sumar, Sonia -- Sarasota, FL: Special Yoga Publication, 1998.
An easy-to-follow program for parents, educators, yoga teachers, and health care professionals which includes: a step-by-step, integrated system of yoga poses designed to increase cognitive and motor skills in children with learning and developmental disabilities. Specialized breathing exercises and relaxation techniques to improve concentration and reduce hyperactivity.
FAM HV 888 .S85 1998
You will dream new dreams: inspiring personal stories by parents of children with disabilities / Klein, Stanley D. -- New York: Kensington Books, 2001.
In this insightful and deeply moving collection of essays, readers will discover the common ground of emotions shared by parents of children with disabilities. Real-life fathers and mothers of kids with cerebral palsy, juvenile diabetes, autism, mental retardation, and other life-changing illnesses or injuries speak from the heart on how they mourned for the child of their dreams, learned the importance of turning to friends instead of being "strong" all the time, experienced the disappointment of letting go of certain expectations for their child and found the unexpected joy of discovering new dreams.
FAM HQ 759.913 .K53 2001
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Resource List for Siblings of Special Needs Children
L'Accident de Marika: une histoire sur -- le handicap physique / Boonen, Stefan -- Saint-Lambert, QC: Chronos Magazines Inc. Éditions Enfants Québec, 2007.
Marika a été victime d'un accident qui l'a rendue paraplégique. Désormais en fauteuil roulant, elle appréhende son retour à l'école. Alexis, son frère, doit aussi s'adapter aux changements qu'a provoqués cet accident dans la vie familiale et dans ses relations avec sa sœur. Cette histoire raconte, à travers les yeux d'Alexis, comment Marika affronte sa nouvelle vie d'enfant.
FAM HV 888 .B6614 2007
Being the other one: growing up with a brother or sister who has special needs / Strohm, Kate -- Boston, MA: Shambhala, 2005.
This book reveals the difficulties faced by siblings at all stages of life, from early childhood through adulthood, when siblings must often assume responsibility for the care of their disabled brothers and sisters. Though the book looks honestly at the many challenges that siblings face, it is full of encouragement and practical strategies.
FAM HV 888 .S77 2005
Brothers and sisters of children with disabilities / Burke, Peter -- London: Jessica Kingley, 2003.
Examining the overlooked subject of non-disabled siblings in families where there is a disabled child, this book details the experiences of these children and explores what it means to them to have a disabled brother or sister. Through family interviews and one-to-one meetings, the author records siblings' views on issues ranging from the everyday social restrictions on their lives, the discrimination they face at school, through to their concerns about the future.
FAM HV 888 .B87 2003
Day by day: children tell their journeys of faith and determination living with a sick brother or sister / Frisbee, Christine. -- New York: Frisbee Foundation Publishing, 2008.
This book gives siblings who have a sick brother or sister a voice, allowing them to tell their own stories. The purpose of this book is to bring understanding and hope to families with a seriously ill child, as well as to educate others about how to take a difficult situation and use it to make you stronger and wiser.
FAM BF 723 .S431 2008
Deedah [DVD] / May, Brooke. -- [Savannah, GA]: Deedah Productions, 2009.
Deedah is the honest, heart-warming and often humorous account of a seven-year old girl's relationship with her six-year old brother, who has Down syndrome - or as he calls it 'up' syndrome.
FAM RJ 506 .D68 M39 2009
Et moi alors? : grandir avec un frère ou une sœur aux besoins particuliers / Blais, Édith. -- Montréal: Éditions de l'Hôpital Sainte-Justine, 2002.
Ce livre met en vedette des jeunes qui partagent leur vie avec un frère ou une sœur aux besoins particuliers. Aussi présente aux jeunes et aux parents des exercices et des stratégies de communication.
FAM HV 888 .B52 2002
Grandir avec toi: une fratrie singulière -- Montréal: Fédération québécoise de l'autisme et des autres troubles envahissants du développement, 2005.
Partager son enfance avec un frère ou une sœur souffrant d’un trouble envahissant du développement (TED) présente d’indéniables difficultés. La gêne, la jalousie et la colère s’entremêlent souvent à l’amour et à la culpabilité. L’attention des parents, nécessairement mal répartie entre les enfants de la famille, fait parfois défaut à ceux d’entre eux qui, au fond, savent bien qu’ils en ont moins besoin. Par la force des choses, ces derniers font souvent preuve d’une grande maturité.
FAM RJ 506 .A9 G62 2005
Hi, my name is Jack: a book for the healthy siblings of chronically ill children / Beall-Sullivan, Christina. -- Park City, UT: Bopar Books, 2005.
Eight-year-old Jack tells what it is like to have a sister who is chronically ill. Appropriate for Ages: 4-8 years
FAM RJ 380 .B42 2005
Living with a brother or sister with special needs / Meyer, Donald J. -- Seattle: University of Washington Press, 1996.
Written for young readers, the book discusses specific disabilities in easy to understand terms. It talks about the good and not-so-good parts of having a brother or sister who has special needs, and offers suggestions for how to make life easier for everyone in the family.
FAM HV 888 .M49 1996
Oh brother!: growing up with a special needs sibling / Hale, Natalie -- Washington, DC: Magination Press, 2004.
An eleven-year-old girl finds ways to handle the unique chanllenges presented by her thirteen-year-old mentally disabled brother by looking for his good qualities and taking the rest in stride.
FAM HV 888 .H25 2004
The sibling slam book: what it's really like to have a bother or sister with special needs -- Bethesda, MD: Woodbine House, 2004.
Over 80 teenagers share their thoughts on living with a sibling who has special needs. Appropriate for Ages: 10-17 years
FAM HV 888 .S58 2005
Views from our shoes: growing up with a brother or sister with special needs -- Bethesda, MD: Woodbine House, 1997.
Essays from 45 children who have siblings with a variety of special needs, including autism, cerebral palsy, developmental delays, visual and hearing impairments, Down and Tourette Syndromes.
FAM HV 891 .V54
When Molly was in the hospital / Duncan Debbie -- Windsor CA: Rayve Productions Inc, 1994.
Anna’s little sister Molly needs to go to the hospital for an operation. In this sensitive and emotional story, Anna tells about the experience from her point of view. Appropriate for Ages: 4-8 years
FAM RJ 242 .D863
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Disabilities – MedlinePlus from the U.S National Library of Medicine
Financial Tips for Parents of Children with Disabilities – CHEO / Conseils financiers pour les parents d’enfants ayant des besoins spéciaux - CHEO
Just for you – People with Disabilities – Health Canada / Spécialement pour vous
- Personnes ayant des incapacités - Santé Canada
Everything you want to know about… Special Needs – TVO Parents
Société pour les enfants handicaps du Québec / Québec Society for Disabled
Abilitypath.org – Supports for Parents of Children with Special Needs
Special Needs – TVO Parents
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● Jooay Jooay
● English and French / anglais et français
● Free / gratuit
● Last updated April 2015 avril dernière mise à jour
● iTunes: Jooay is an app that helps children with disabilities and their families to locate leisure opportunities that are: accessible, suit their needs and abilities, match their preferences, and can help them develop and participate in society. Jooay uses the location of your device to find activities that are close and easily accessible to you and your family. The app allows you to quickly and conveniently view: location, program description, accessibility, time frames, cost and more. The app lists activities separated into the following categories: Sports, arts, camps and other resources that aim to aid children and their families to get involved with leisure in the easiest, most accessible way to them. / « Jooay » est un app qui aide les jeunes ayant une déficience, ainsi que leurs familles, à localiser des activités ou programmes qui sont accessibles; qui répondent à leurs besoins et capacités, correspondent à leurs préférences,; et qui les aident à développer et participer dans la société. « Jooay » utilise l’emplacement de votre appareil pour trouver des activités qui sont à proximité et facilement accessibles à vous et votre famille. L’application vous permet de visualiser facilementl’emplacement, la description du programme, l’accessibilité, les dates offerts, le coût, et bien plus encore! « Jooay » liste plusieurs activités séparées dans les catégories suivantes : Les sports, les arts, les camps, et d'autres ressources visant à aider les enfants et leurs familles à s’impliquer dans les loisirs de façon simple et accessible.
● Available from / disponible depuis Google Play & iTunes
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Ottawa Children’s Treatment Centre (OCTC) – Le centre de traitement pour enfants
395 Smyth Rd
Ottawa, ON K1H 8L2
Ottawa-Carleton Association for Persons with Developmental Disabilities (OCAPDD)
/ L’Association d’Ottawa-Carleton pour personnes ayant une déficience
229 Colonnade Rd
Ottawa, ON K2E 7K3
Coordination des services pour les personnes ayant une déficiene intellectuelle
/ Service Coordination for People with Developmental Disabilities
200-150 Montreal Rd
Ottawa, ON K1L 8H2
This guide provides medical material for information purposes only and is not intended to replace the advice of your physician. The information may not always apply to your individual situation.
The guide represents material available in the Family Resource Library collection at CHEO. It is not intended to be an exhaustive list. Your local public library may also be able to provide valuable information.
If you require materials in alternative formats, please contact the library at 613-737-7600 ext. 2157 or at firstname.lastname@example.org.
Last Updated: May 2016
Links Tested: May 2016