Kaitlin Atkinson Family Resource Library
Children's Hospital of Eastern Ontario
401 Smyth Rd., Ottawa, ON K1H 8L1
613-738-3942
Resource List for Parents
Resource List for Siblings of Special Needs Children
Web Sites
Local Contact(s)
Resource List for Parents
After the tears: parents talk about raising a child with a disability / by Simons, Robin – San Diego: Harcourt, 1987.
FAM HV 888 .S56
Building a joyful life with your child who has special needs / by Whiteman, Nancy J. – London: Jessica Kingsley, 2007.
FAM HQ 759.913 .W54 2007
The child with special needs: encouraging intellectual and emotional growth / by Greenspan, Stanley I. – Reading, MA: Addison-Wesley, 1998.
FAM HV 894 .G73
Children with acquired brain injury: educating and supporting families – Baltimore, Md. Paul H. Brookes, 1996.
FAM RJ 496 .B7 F35 1996
Children with disabilities
– 6th ed. – Baltimore, MD: Paul H. Brookes, 2007.
FAM HV 888 .B38 2007
Children with special needs: Applicable standards from: caring for our children: National health and safety performance standards: guidelines for out-of-home child care / by American Academy of Pediatrics – 2nd ed. – Elk Grove Village, IL: American Academy of Pediatrics, 2003.
FAM HV 888.5 .C463 2003
Congenital disorders sourcebook – Detroit: Omnigraphics. Inc. 1997.
FAM RG 626 .C597 REF
Delicate threads: friendships between children with and without special needs in inclusive settings / by Staub, Debbie – Bethesda, MD: Woodbine House, 1998.
FAM HV 888 .S72
Dialogue avec les enfants handicapés / by Saint-Pierre, Cecile – Sherbrooke, Que. Le Productions GGC, 1996.
Easy read. Summary: Teacher psychologist does simple tests with physically and mentally handicapped children. Helps parents and other contributors better understand their roles in raising these children.
FAM HV 888 .S34
Don't call me special: A first look at disability / by Thomas, Pat – Hauppauge, NY: Barron's Educational Series, 2002.
FAM HV 888 .T56 2002
Elever un enfant handicapé: tome 1: de la naissance aux premiers acquis scolaires / by Della-Courtiade, Claude – 3ieme ed. – Paris: EME editions sociales francaises, c1998.
FAM HV 888 .D44 1998
L'enfant inattendu: comment accueillir un enfant handicapé et favoriser son intégration à la vie familiale et communautaire / by Lamarche, Constance – Montreal: Les Editions de Boreal Express, 1987.
Simple, informative & encouraging. Summary: Touches on the many questions and concerns of parents with mentally handicapped newborns. Discusses family issues & the role of doctors.
FAM HV 888 .L34
Les enfants différents: les comprendre pour mieux les aider / by Ndayisaba, Joseph – Montreal: Editions Logiques, 1999.
FAM HV 888 .N33
Exceptional children - ordinary schools: getting the education you want for your special needs child / by Forman, Norm – Markham, ON: Fitzhenry & Whiteside, 2004.
Summary: Addressing the educational concerns and needs of children with learning disabilities and other special needs. A comprehensive guide for parents seeking to improve the lives of their child's education, as well as resources on how to become a successful advocate for their needs.
FAM LC 3969 .F67 2004
Extraordinary friends / by Rogers, Fred – New York: Putnam, c2000.
FAM HV 888 .R63
Financial assistance measures for families with disabled child – Quebec: Ministère de la santé et des services sociaux, 2001.
Fam HV 1559 .C32 Q6413
For richer or poorer: ensuring the financial security of your special needs dependent(s) – Ottawa: Down Syndrome Association, 2000.
FAM HV 888 .F67 2000
From the heart: on being the mother of a child with special needs – Bethesda, Md. Woodbine House, 1994.
FAM HQ 759.913 .F76 1995
Heart of a champion: inspirational stories of people who have overcome many of life's challenging adversities – [Canada] Friesens Printing, 2000.
FAM HV 888 .T78
Heart to heart: parents of blind and partially sighted children talk about their feelings – Los Angeles, Ca. Blind Children's Center, s.d.
FAM HV 1596.4 .H42
Heart to heart: conversations with the parents of blind children [VHS] – Los Angeles, Ca. Blind Children's Center, 1988.
FAM HV 1596.4 .H42 VIDEO
I am a beautiful person - sexuality and me: a video for parents of teens with disabilities [VHS] – Minneapolis, MN: PACER Center, 1996.
FAM HQ 57.2 .I25 1996 VIDEO
I am beginning my child's service plan: a guide for the overall evaluation of needs, designed for the parents of a disabled child / by Gignac, Michel – Drummondville, QC: Office des personnes handicapees du Quebec, 1996.
FAM HV 1559 .C32 G5413
I openers: Parents ask questions about sexuality and children with developmental disabilities / by Hingsburger, Dave – Vancouver, B.C. Family Support Institute Press, 1993.
FAM HQ 57.2 .H56
In time and with love: caring for the special needs baby / by Segal, Marilyn M. – New York: Newmarket Press, 1988.
FAM HV 888 .S44
Janet's got her period: planning for self-care in menstruation for girls amd young women with special learning needs – Victoria, Aust. Social Biology Resources Centre, 1990.
FAM HQ 54 .J36 KIT
Keeping Katherine: a mother's journey to acceptance / by Zimmermann, Susan – New York: Three Rivers Press, 2004.
FAM HQ 759.913 .Z56 2004
Keys to parenting a child with a learning disability / by McNamara, Barry E. – New York: Barron's, 1995.
FAM LC 4704.73 .M36
Kids in the syndrome mix of ADHD, LD, Asperger's, Tourettes's, Bipolar, & more: the one stop guide for parents,teachers and other professionals / by Kutscher, Martin L. – London: Jessica Kinsley, 2005.
FAM RJ 506 .B44 K88 2006
Laying community foundations for your child with a disability: how to establish relationships that will support our child after you're gone / by Stengle , Linda J. – Bethesda, MD: Woodbine House, 1996.
FAM HV 888 .S73
Learning from each other: physicians and parents of persons with developmental disabilities [VHS] – Kingston, ON: Queen's University,
Summary: Discusses the importance of partnerships between parents and physicians caring for children with disabilities. Clear, and concise.
FAM HV 891 .L42 VIDEO
Letters to our children – Calgary, Alta. Letters to Our Children Project, 1993.
FAM HV 888 .L48
A life worth living: a book about parenting infants and preschoolers with visual impairment and multidisability / by Robinet, Judy M. – Windsor, Ont. Robinet Pub. 1992.
FAM HV 1596.2 .R62
Married with special needs children: a couple's guide to keeping connected / by Marshak. Laura E. – Bethesda, MD: Woodbine House, 2007.
Eases concerns and addresses a broad range of marital and parenting issues that may be present when a couple has a child with a disability.
FAM HQ 759.913 .M27 2006
More than a mom: living a full and balanced life when your child has special needs / by Baskin, Amy – Bethesda, MD: Woodbine House, 2006.
A book for mothers whose children have developmental or physical disabilities, mental health or learning issues, or chronic medical conditions. This book is designed to help you cope, adjust, and find the inspiration to make your daily life easier and more fulfilling.
FAM HQ 759.913 .B37 2006
My journey with Jake: a memoir of parenting and disability / by Edelson, Miriam – Toronto: Between the Lines, 2000.
Easy Read. Summary: Offers hope and practical advice for families and professionals dealing disabled children. A poignant memoir of a devoted mother & a hard-hitting, well-researched look at health care for Canada's children.
FAM HQ 759.913 .E33 2000
Nobody's perfect: living and growing with children who have special needs / by Miller, Nancy B. – Baltimore, Md. Paul H. Brookes, 1994.
FAM HV 888 .M54
Nous sommes encore là [VHS] – 1992.
FAM RJ 496 .S74 N68 VIDEO
Parenting special children [VHS] – 2nd ed. – Toronto: Kinetic Inc. 1995.
FAM HV 888 .T47 VIDEO
Parenting your complex child: become a powerful advocate for the autistic, Down syndrome, PDD, bipolar, and other special-needs child / by Morgan, Peggy Lou – New York, NY: AMACOM, 2006.
A ressourcful book on the up-bringing of children with special needs.
FAM RJ 506 .B44 M73 2006
Raising a child who has a physical disability / by Albrecht, Donna G. – New York: Wiley, 1995.
FAM HV 904 .A5
Raising and educating a deaf child / by Marschark, Marc – New York: Oxford UP, 1997.
"A comprehensive guide to the choices, controversies, and decisions faced by parents and educators."
FAM HV 2391 .M26
Reach out and teach: parent handbook: meeting the training needs of parents of visually and multiply handicappied children / by Ferrell, Kay Alicyn – New York: American Foundation for the Blind, 1985.
FAM HV 1626 .F47
A Reader's guide for parents of children with mental, physical or emotional disabilities / by Moore, Cory – 3rd ed. – Rockville, Md. Woodbine House, 1990.
Reflections from a different journey: what adults with disabilities wish all parents knew – New York: McGraw-Hill, 2004.
FAM HQ 759.913 .R43 2004
Regards [VHS] – France: Image et Concept, 1993.
FAM HV 888 .R43 VIDEO
Relaxation: a comprehensive manual for adults, children, and children with special needs / by Cautela, Joseph R. – Champaign, Ill. Research Press, 1978.
FAM BF 723 .S75 C38
Shared feelings: a parent guide to sexuality education for children, adolescents and adults who have a mental handicap / by Maksym, Diane – North York, Ontario: Roeher Institute, c1990.
FAM HQ 57.2 .M33 1990
The special child: a source book for parents of children with developmental disabilities – Baltimore, Md. Paul H. Brookes, 1995.
A book containing information helping you to face stressful questions , make informed decisions, and provide optimal care to your child.
FAM HV 891 .S63
Special children, challenged parents: the struggles and rewards of raising a child with a disability / by Naseef, Robert A. – rev. ed. – Baltimore: Paul H. Brookes, 2001.
Dr. Naseef is a professional psychologist and father of an autistic boy. He addreses critical questions such as managing difficult emotions, coping with challenging behaviour and maintaining family unity.
FAM HQ 759.913 .N37 2001
A Special kind of parenting: meeting the needs of handicapped children / by Good, Julia Darnell – Franklin Park, IL: La Leche League International, 1985.
FAM HV 888 .G66
The special-needs reading list: an annotated guide to the best publications for parents and professionals / by Sweeney, Wilma K. – Bethesda, MD: Woodbine House, 1998.
FAM HV 888 .S84
Special parent, special child: Parents of children with disabilities share their trials, triumphs & hard-won wisdom / by Sullivan, Tom – New York: G.P. Putnam's Sons, [1995]
FAM HQ 759.913 .S85 1995
Spiritual care for children in specialized settings: breathing underwater / by Friesen, Michael – Binghamton, NY: Haworth Pastoral Press, 2000.
Moderate. Summary: This book provides insights into the dynamics of spirituality and offers practical ways of creating a spiritually nurturing environment for children and teens in a variety of settings.
FAM BJ 1631 .F75
Steps to independence: teaching everyday skills to children with special needs / by Baker, Bruce L. – 4th ed. – Baltimore, MD: Paul H. Brookes Publishing, 2004.
Proven strategies for teaching life skills to children from age 3 through young adulthood. Provides step-by-step guide for teaching seven types of skills.
FAM HV 891 .B16 2004
Tibby tried it / by Useman, Sharon – Washington, DC: Maginatio Press, 1999.
Tibby the tree swallow cannot fly because he has a crooked wing, but the other animals teach him skills that come in handy when a baby robin falls from its nest.
FAM BF 723 .S3 U83
Un enfant à découvrir: au-delà de la déficience physique et intellectuelle / by Ferland, Francine – Montreal: Editions de l' Hopital Sainte Justine, 2001.
Easy to read. Summary: This book focuses on how to not let the child's mental or physical deficiency be the major part of his or her life.
FAM HV 888 .F47
Uncommon fathers: reflections on raising a child with a disability – Bethesda, Md. Woodbine House, 1995.
FAM HQ 759.913 U73 1995
Uncommon voyage: parenting a special needs child / by Kramer, Laura Shapiro – 2nd ed. – Berkeley, CA: North Atlantic Books, 2001.
FAM RJ 496 .C4 K73 2001
When your child has a disability: the complete sourcebook of daily and medical care – rev. ed. – Baltimore: Paul H. Brookes, 2001.
Practical information and guidance for parents. Contains user-friendly information for nurturing and caring for children with diasabilities.
FAM HV 888 .W53 2001
When your child is technology assisted: a home care guide for families / by Kahn, Paul – Boston: New England Medical Center, 1997.
FAM RJ 380 .K33
Working with parents of young children with disabilities / by Webster, Elizabeth J. – San Diego, Ca. Singular Publishing Group, 1993.
FAM HV 888 .W44
Yoga for the special child: a therapeutic approach for infants and children with Down Syndrome, cerebral palsy, and learning disabilities / by Sumar, Sonia – Sarasota, FL: Special Yoga Publication, 1998.
FAM HV 888 .S85 1998
You will dream new dreams: inspiring personal stories by parents of children with disabilities / by Klein, Stanley D. – New York: Kensington Books, 2001.
FAM HQ 759.913 .K53 2001
Resource List for Siblings of Special Needs Children
Another look at the rainbow – Tiburon, Ca. Centre for Attitudinal Healing, 1982.
Brothers and sisters of children with serious illness attend a support group and talk about their lives, and their feelings.
Appropriate for Ages: 8-12 years
FAM BF 575 .G7 A56
Being the other one: growing up with a brother or sister who has special needs / by Strohm, Kate – Boston, MA: Shambhala, 2005.
FAM HV 888 .S77 2005
Brothers and sisters: a special part of exceptional families / by Powell, Thomas H. – 2nd ed. – Baltimore: Paul H. Brookes, 1993.
FAM HV 888 .P69 1993
Brothers and sisters of children with disabilities / by Burke, Peter – London: Jessica Kingley, 2003.
FAM HV 888 .B87 2003
Brothers, sisters and special needs: information and activities for helping young siblings of children with chronic illnesses and developmental disabilities / by Lobato, Debra L. – Baltimore, Md. Paul H. Brookes, 1990.
FAM HV 891 .L63
Fighting tackle / by Christopher, Matt – Boston: Little, Brown, 1995.
When he becomes stronger but slower, Terry must deal with being moved from defensive safety to offensive tackle on his football team and with the fact that his younger brother, who was born with Down syndrome, is becoming a faster runner. Terry suddenly feels jealous of his younger brother Nicky who outdistances him on the track. Nicky was born with Down Syndrome and is practising to be a sprinter for the Special Olympics.
Appropriate for Ages: 9-12 years
FAM RJ 506 .D68 C47
Hey! What about me? / by Ganz, Pam – Hoffman Estates, IL: SuperSibs! 2003. FAM RC 262 .G36 2003
In the shadow of illness: parents and siblings of the chronically ill child / by Bluebond-Langner, Myra – Princeton, NJ: Princeton University Press, 1996.
For anyone who studies, cares for, or lives with the seriously ill. Talks about what it's like to live in the shadow of a chronic illness (Cystic Fibrosis) and the impact it has on siblings.
FAM BF 575 .G7 B68 1996
It isn't fair!: siblings of children with disabilities – Westport, Conn. Bergin & Harvey, 1993.
FAM HV 888.5 I7
La Grande journée: les enfants polyhandicapés / by Fonteneau, Jean-Louis – Paris: Doin, 1997.
Cette bande dessinée suit Élodie, une jeune fille, qui est polyhandicapée, et sa famille. Comprend des questions et réponses à la fin.
Pour les enfants de 8 à 17 ans
FAM HV 888 .G72
Living with a brother or sister with special needs / by Meyer, Donald J. – 2nd ed. – Seattle: University of Washington Press, 1996.
FAM HV 888 .M49 1996
My brother, Matthew / by Thompson, Mary – Rockville, MD: Woodbine House, 1992.
Though David knows frustration and resentment at times, he feels he understands his disabled little brother even better than his parents do; and together the two boys experience a great deal of joy. David narrates this story about what happens in his family and what it is like to be the older brother of Matthew, a boy who was born with mental disabilities.
Appropriate for Ages: 4-8 years
FAM HV 888 .T45
My sister / by Konschuh, Sheila J. – Calgary, Alta. 1991.
Told though the eyes of an elder sibling, this story relates her feelings about her disabled sister.
Appropriate for Ages: 4-7 years
FAM HV 891 .K66
The new baby / by Civardi, Anne – rev. ed. – London, U.K. Usborne Publishing, 2000.
This book follows the Bunn family as they prepare for the new baby, visit the baby in the hospital, and bring the new baby home.
Appropriate for Ages: 4-8 years
FAM BF 723 .S43 C58
Oh brother!: growing up with a special needs sibling / by Hale, Natalie – Washington, DC: Magination Press, 2004.
Summary: An eleven-year-old girl finds ways to handle the unique chanllenges presented by her thirteen-year-old mentally disabled brother by looking for his good qualities and taking the rest in stride.
FAM HV 888 .H25 2004
The sibling slam book: what it's really like to have a bother or sister with special needs – Bethesda, MD: Woodbine House, 2004.
Over 80 teenagers share their thoughts on living with a sibling who has special needs.
Appropriate for Ages: 10-17 years
FAM HV 888 .S58 2005
Views from our shoes: growing up with a brother or sister with special needs – Bethesda, MD: Woodbine House, 1997.
Essays from 45 children who have siblings with a variety of special needs, including autism, cerebral palsy, developmental delays, visual and hearing impairments, Down and Tourette Syndromes.
Stories from children about having a sibling with a disability (various disabilities mentioned)
Appropriate for all Ages
FAM HV 891 .V54
What about me?: growing up with a developmentally disabled sibling / by Siegel, Bryna – New York: Plenum Press, 1994.
Laura sometimes finds her little brother Tom a nuisance, but when he gets sick and spends a long time in hospital, she feels guilty, but angry at all the attention he gets.
Appropriate for Ages: 4-8 years
FAM HV 891 .S55
What about me?: when brothers and sisters get sick / by Peterkin, Allan – New York: Magination Press, 1992.
A story about the feelings a child may have when their sibling is hospitalized.
Summary: Laura experiences conflicting emotions when her brother becomes seriously ill. Includes suggestions for parents to help their well children cope with a chronically ill sibling.
Appropriate for Ages: 4-8 years
FAM RJ 47.5 P386
When Molly was in the hospital / by Duncan Debbie – Windsor CA: Rayve Productions Inc, 1994.
Anna’s little sister Molly needs to go to the hospital for an operation. In this sensitive and emotional story, Anna tells about the experience from her point of view.
Appropriate for Ages: 4-8 years
FAM RJ 242 .D863
Web Sites:
http://www.hc-sc.gc.ca/hl-vs/jfy-spv/dis-inca-eng.php
(Health Canada – People with disabilities)
Local Contacts:
Ottawa-Carleton Association for Persons with Developmental Disabilities (OCAPDD)
200-250 City Centre Avenue
613-569-8993
Email:
ocapdd@ocapdd.on.ca
Service Coordination des services
150 Montreal Rd, Suite 200
Ottawa, ON K1L 8H2
613-748-1018
Email:
admin@scottawa.on.ca
This guide provides medical material for information purposes only and is not intended to replace the advice of your physician. The information may not always apply to your individual situation.
The guide represents material available in the Family Resource Library collection at CHEO. It is not intended to be an exhaustive list. Your local public library may also be able to provide valuable information.
Last updated: June 2008