Kaitlin Atkinson Family Resource Library
Children's Hospital of Eastern Ontario Printer Friendly Version
401 Smyth Rd., Ottawa, ON K1H 8L1
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Resource List for Parents
Resource List for Parents
Building bridges through sensory integration / Yack, Ellen -- Weston, ON: Print Three, 1998.
Written by three occupational therapists, this book offers a combination of theory and strategies. It is a useful tool for those working with young children, but also broad enough to be adapted for older children and adults.
FAM RJ 496 .S44 Y34 1998
Educational and therapeutic intervention in Rett syndrome -- Clinton, MD: International Rett Syndrome Assoc. 1995.
FAM RJ 506 .R47 E38
Keeping Katherine: a mother's journey to acceptance / Zimmermann, Susan -- New York: Three Rivers Press, 2004.
A story of personal transformation that reminds us that it isn’t what happens to us that shapes our humanity, but how we react, Keeping Katherine shows the unconditional love that exists in families and the gifts the profoundly disabled can offer to those who try to understand them.
FAM HQ 759.913 .Z56 2004
Pathways to learning in Rett syndrome / Lewis, J.E. -- London: Rett Syndrome Association (U.K.) 1996.
Parents and teachers of girls with Rett Syndrome will welcome this book, which offers a greater understanding of, and insight into, their potential to learn and develop.
FAM RJ 506 .R47 L48
The Rett syndrome handbook / Hunter, Kathy -- Clinton, MD: International Rett Syndrome Association, 1999.
A complete and comprehensive resource dealing with all facets of Rett Syndrome in words you can understand from those who understand. A valued resource, now expanded and revised in this second edition.
FAM RJ 506 .R47 H86
Silent angels: the Rett syndrome story [VHS] -- International Rett Syndrome Assoc. 2000.
Silent Angels: The Rett Syndrome Story, hosted by Julia Roberts, tells about the amazing stories of families and researchers struggle leading to the discovery of the gene that causes the rare neurological disorder known as Rett syndrome.
FAM RJ 506 .R47 S54 VIDEO
Understanding Rett syndrome: a practical guide for parents, teachers, and therapists / Lindberg, Barbro -- Toronto: Hogrefe & Huber, 2006.
This book describes the difficulties and challenges of girls and women with Rett Syndrome. It proposes solutions to help them in everyday life with regards to social, physical and ethical aspects.
FAM RJ 506 .R47 L56 2006
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Ontario Rett Syndrome Association
Rett Syndrome – CHEO / Syndrome de Rett - CHEO
International Rett Syndrome Association
Rett Syndrome – MedlinePlus from the U.S. National Library of Medicine
Rett Syndrome Research Trust
Rett Syndrome Information Page – From the National Institute of Neurological
Disorders and Stroke
Le syndrome de Rett – Fédération québécoise de l’autisme
Rett Syndrome – NORD: National Organization for Rare Disorders
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Association québécoise du syndrome de Rett
602-6525 chemin de la Côte Saint-Luc
Côte St. Luc, Québec H4V 1G5
401 Smyth Rd.
Ottawa, ON K1H 8L1
Physician Referral Required / par les médecins renvoi
This guide provides medical material for information purposes only and is not intended to replace the advice of your physician. The information may not always apply to your individual situation.
The guide represents material available in the Family Resource Library collection at CHEO. It is not intended to be an exhaustive list. Your local public library may also be able to provide valuable information.
If you require materials in alternative formats, please contact the library at 613-737-7600 ext. 2157 or at email@example.com.
Last Updated: May 2016
Links Tested: May 2016