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Resources – Tourette Syndrome


Kaitlin Atkinson Family Resource Library


Children's Hospital of Eastern Ontario                                                  Printer Friendly Version
401 Smyth Rd., Ottawa, ON K1H 8L1
613-738-3942
library@cheo.on.ca
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Resource List for Parents

Reading List for Kids and Teens

Web Sites

YouTube

Local Contact

Resource List for Parents

Children with Tourette syndrome: a parents' guide -- Bethesda, MD: Woodbine House, 2007.
Written by leading experts in the field and experienced parents, this guide provides an excellent blend of professional expertise and empathetic advice. Families with newly diagnosed children find answers to their most pressing questions about this often perplexing neurological disorder, as well as coping strategies and emotional support.
FAM RJ 496 .T68 C3 2007


I have Tourette's but Tourette's doesn't have me: dispelling the myth one child at a time [DVD] / Walkup, John -- New York: HBO & Tourette Syndrome Association, Inc. 2005
Children with Tourette's Syndrome, ages 6 to about 14, candidly describe what it's like to have Tourette's. They show what their tics are like, talk about difficulties with school, social isolation, embarrassment, and feeling misunderstood and even unwanted due to the inherited condition they have no control over.
FAM RJ 496 .T68 W34 2005 DVD


Kids in the syndrome mix of ADHD, LD, Asperger's, Tourette's, Bipolar, & more: the one stop guide for parents, teachers and other professionals / Kutscher, Martin L -- London: Jessica Kinsley, 2005.
The author presents effective behavioral strategies for responding to children who display traits of these disorders - whether at home, at school, or in other settings - along with case vignettes and practical tips.  His sympathetic yet upbeat approach and skillful explanations of the inner world of children in the syndrome mix make this an invaluable companion for parents, teachers, professionals, and anyone else who needs fast and to-the-point advice on children with special needs.
FAM RJ 506 .B44 K88 2006


Life's a twitch [VHS] / Bisaillon, Cindy -- Montreal: National Film Board of Canada, 2002.
This is the story of Duncan McKinlay, who has Tourette syndrome. At seven, he was called a devil.  His parents thought he was delinquent and his classmates thought he was nuts. At 19 he was finally diagnosed and he spent much energy researching Tourette syndrome. Now he has found ways of channeling the extra energy and has finished a doctorate in psychology.
FAM RJ 496 .T68 B57 VIDEO


A mind of its own: Tourette's syndrome: a story and a guide / Bruun, Ruth Dowling -- New York: Oxford UP, 1994.
It presents factual information on all important aspects of TS along with a composite case history. The story of Michael Lockman, who typifies the average child with TS, is woven into the factual text which contains information on symptomology, diagnosis, natural history, biochemistry, genetics, associated disorders, treatment and related topics.
FAM RJ 496 .T68 B78


Understanding Tourette syndrome: a handbook for families -- Toronto: Tourette Syndrome Foundation of Canada, 1998.
A compassionate handbook for the family and friends of those newly diagnosed with TS, written by experts and parents who've been through it all.
FAM RJ 496 .T68 U63 1998


The unwelcome companion / Fowler, Rick -- Cashiers, NC: Silver Run Publications, 1996.
The author carries his audience along on the painful and poignant journey to find a proper diagnosis and treatment for his disorder, evoking curiosity and compassion in a way no clinical manual can.
FAM RJ 496 .T68 F69 1996

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Reading List for Kids and Teens

Adam and the magic marble / Beuhrens, Adam -- Duarte, CA: Hope Press, 1991.
Two boys with Tourette syndrome find a magic marble that can cure their disorder but decide that their friend with cerebral palsy needs the marble more than they do.
FAM RJ 496 .T68 B83

I can't stop! a story about Tourette syndrome / Niner, Holly L -- Morton Grove, Il: Albert Whitman & Company, 2005.
A boy is diagnosed with Tourette syndrome and learns about constructive ways he can manage his condition.  Includes nonfiction information from a physician.
FAM RJ 496 .T68 N65 2005


Jerk, California / Friesen, Jonathan -- Toronto: Paw Prints, 2008.
Wrought with tension, romance, and hope, Jerk, California tells the story of Sam, who sets out on a cross-country quest to learn the truth about his family and his inherited Tourette's Syndrome, along the way finding both love and acceptance.
FAM RJ 496 .T68 F74 2008


Tic talk: a 9-year-old boy's true story about living with Tourette syndrome / Peters, Dylan -- Chandler, AZ: Five Star Publications, 2009.
In his own words, Dylan helps readers of all ages understand Tourette Syndrome and the enormous pressures this little understood affliction places on those who have it and on those who love them.
FAM RJ 496 .T68 P48 2009


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Web Sites

Tourette Syndrome – MedlinePlus from the U.S. National Library of Medicine

Tourette Syndrome Foundation of Canada

Tourette Syndrome Foundation of Canada – Ottawa Chapter

Tourette Syndrome Fact Sheet – National Institute of Neurological Disorders and Stroke

Kids Health – Information for Kids, Teens and Parents from the Nemours Foundation

Association québécoise du syndrome de la Tourette

Le syndrome de Gilles de la Tourette – Centre d’évaluation neuropsychologique et d’orientation pédagogique FL

Tourette Syndrome – Children’s Mental Health Ontario / Syndrome de la Tourette – Santé mentale pour enfants Ontario

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YouTube

Understanding Tics & Tourette Syndrome – CHEOvideos

Local Contacts

Tourette Syndrome Foundation of Canada - Ottawa Chapter 
613- 823-1471
info@tsottawa.com

This guide provides medical material for information purposes only and is not intended to replace the advice of your physician. The information may not always apply to your individual situation.

The guide represents material available in the Family Resource Library collection at CHEO. It is not intended to be an exhaustive list. Your local public library may also be able to provide valuable information.

If you require materials in alternative formats, please contact the library at 613-737-7600 ext. 2157 or at library@cheo.on.ca.

Last Updated: June 2016
Links Tested: June 2016

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