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Ressources – Anémie de cellules de faucille

Bibliothèque de ressources familiales Kaitlin Atkinson
Centre hospitalier pour enfants de l'est de l'Ontario                                                     version imprimable
401, chemin Smyth
Ottawa, ON K1H 8L1
613-738-3942
library@cheo.on.ca
Suivez-nous @CHEOfrl


Liste de ressources pour les parents

Sites Web

Liaison régionale

Liste de ressources pour les parents

Hope and destiny: a patient's and parent's guide to Sickle Cell Disease and Sickle Cell Trait / Platt, Allan F. -- Roscoe, IL: Hilton Pub, 2002.
This resource provides clear-cut and in-depth information on living with the illness. It offers the information on preventing complications, research, and treatment. The knowledge patients and family members need is organized in an easy-to-read format that promotes overall healthy living.
FAM RJ 416 .S53 P56


Nutrition for the child with sickle cell disease / Willams, Ruth -- Memphis, TN: St. Jude Children's Research Hospital, 1996
This book for children with sickle cell disease contains facts about nutrition, activities to help them learn about nutrition, and a section for parents.
FAM RJ 416 .S53 W54


Sickle cell disease / Peak, Lizbeth. -- Detroit: Lucent Books, 2008.
Discusses the causes, symptoms, and treatment options for sickle cell anemia and describes what populations are predisposed toward the disease.
FAM RC 641.7 .S5 P43 2008

Sickle cell disease / Jones, Phill. -- New York: Chelsea House Publishers, 2008.
Explores the scientific discoveries that led to an understanding of the genetic basis of the disease, explaining how a single mutation in hemoglobin multiplies into the many symptoms of sickle cell disease. Also investigated are treatments that help individuals manage sickle cell disease symptoms, and how gene therapy and stem cell therapy may one day lead to a cure for the disease.
FAM RC 641.7 .S5 J67 2008

Taking control: teenagers living with sickle cell disease / Day, Sara -- Memphis, TN: St. Jude Children's Research Hospital, 1994
This booklet has chapters on the following: an overview of sickle cell disease; pain and infection; general health issues; complications and common treatment options.
FAM RJ 416 .S53 T34 27


Sites Web 

Sickle Cell Anemia – MedlinePlus from the U.S. National Library of Medicine

Anémie falciforme (drépanocytose) : un guide pratique pour les parents – About Kids Health / Sickle Cell Anemia – About Kids Health

Sickle Cell Anemia - Kids Health – Information for Kids, Teens and Parents from the Nemours Foundation

Sickle Cell Association of America

What Is Sickle Cell Anemia? – National Heart, Lung and Blood Institute

Sickle Cell Awareness Group of Ontario

Anémie falciforme – Santé et services sociaux Quebec

Association d'anémie falciforme du Québec / Sickle Cell Anemia Association of Quebec

Retour vers le haut


Liaison régionale 

Sickle Cell Association of Ontario
4610 Dufferin Street, Suite 205
North York, ON M3H 5S4
416-789-2855
sicklecell@look.ca

Association d'anémie falciforme du Québec / Sickle Cell Anemia Association of Québec
7333, rue Saint-Denis, bureau 3.
Montréal, QC H2R 2E5
514-507-0891
wsanon@aafq.org  

Ce guide fournit du matériel médical pour informations seulement et ne vise pas à remplacer les conseils du médecin. Ces informations pourraient ne pas toujours s'appliquer aux situations individuelles.

Ce guide présente le matériel disponible à la bibliothèque de ressources familiales du CHEO. Ce n'est pas une liste complète. Votre bibliothèque publique locale pourrait aussi être en mesure de vous fournir des informations précieuses.


Si vous avez besoin des documents en formats alternatifs, s’il vous plaît contacter le bibliothèque au 613-737-7600 poste 2157 ou à library@cheo.on.ca.


Mise-à-jour : 2016 juin
Liens verifiés : 2016 juin

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