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Ressources – Cardiopathie et les problèmes de coeur

Bibliothèque de ressources familiales Kaitlin Atkinson

CHEO                                                                                                                  Version imprimable
401, chemin Smyth
Ottawa, ON K1H 8L1
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Liste de ressources pour les familles

Sites Web

Liaisons régionales

Liste de ressources pour les familles

After the Fontan: how Fontan survivors fare in the long run / Sivasubramanian, S -- S. Sivasubramanian, 1999.
This short report of published outcome data after the Fontan operation is presented in simple non-technical language easily understood by parents, students and non-medical people.
FAM RJ 424 .S58

Cardiac kids / Elder, Vicci -- Dayton: Dayton Area Heart and Cancer Association, 1994.
Describes medical tests a child will experience after being diagnosed with a heart problem. It includes information on emotional impact on siblings and family members, as well as helpful suggestions for parents.
FAM RJ 426 .C64 E43

Heart caths for kids: a book for parents of children needing heart catheterization / Oates, Kerri -- Atlanta, GA: Pritchett & Hull Associates, 2001.
This step-by-step guide tells parents about every aspect of the cath procedure from preparing for the cath to what to do afterwards. More involved definitions and explanations of specific cath procedures are covered in an easy-to-understand way in the appendix. This comforting book can help parents during a very tough time.
FAM RJ 423.5 .C36 O3 2001

Heart defects in children: what every parent should know / Wild, Cheryl -- Minneapolis: Chronimed Publishing, 1999.
This book was written so that parents can have all the information they need, including: identifying the type of defect; a review of the most common treatments in use; an overview of the tests used for diagnosis and treatment; what to ask the doctor; and how to prepare for your child's surgery. A unique feature of this book is "Draw-On Hearts" -- illustrations that enable physicians to draw the exact structure of the child's defect and repair.
FAM RJ 421 .W53

The heart: our circulatory system / Simon, Seymour -- New York: Morrow, 1996.
This informative, colorful book describes the heart, blood, and other parts of the body's circulatory system and explains how each component functions.
FAM QP 111.6 .S48

The heart of a child: what families need to know about heart disorders in children / Neill, Catherine A. -- Baltimore, MD: Johns Hopkins University Press, 2001.
Written for parents whose child has a heart disorder, this book provides up-to-date and reliable information from medical experts on children's heart problems.
FAM RJ 426 .C64 N45 2001

Heart smart / Huesman, Tony -- Dayton: TenderHearts, 1994.
This book is written for young children to teach them that good heart health begins at an early age. It emphasizes the importance of diet, exercise, and not smoking.
FAM RJ 421 .H83

Hypertrophic cardiomyopathy: for patients, their families, and interested physicians / Maron, Barry J -- Marmock, NY: Futura Media Services, 2001.
In clear and straightforward language, this book explains what hypertrophic cardiomyopathy is, what the symptoms are, and how it can be treated, as well as reviewing the genetic implications and offering candid lifestyle advice.
FAM RJ 426 .C64 M37

Hypoplastic left heart syndrome: a handbook for parents / Jaworski, Anna -- Mound, TX: Baby Hearts Press, 1995.
In this book you’ll find out what to expect when your child has open heart surgery and how to live with a child with a heart defect. It is written by a parent, for parents of children with severe congenital heart defects.
FAM RJ 426 .C64 J38

Matty's heart: a child's and parent's guide to open heart surgery / Clabough, Jean -- San Bernardino, CA: Aletheia Publishing, 1995.
Mr. Pump tells the story of Matthew Lewis going through heart surgery and explains all the pre and post op procedures. A narrative boxed section is on each page, explaining the procedures in layman terms for older children & parents. The goal of this book is to prepare children and parents for heart surgery.
FAM RJ 424 .C52

Matty's heart cath: story and coloring book / Clabough, Jean -- San Bernardino, CA: Aletheia Pub., 1995.
This book explains the heart catheterization procedure to children.
FAM RJ 423.5 .C36 C52

The Mayo Clinic heart book -- New York: William Morrow, 2000.
This book is a fully updated edition of the classic guide to cardiovascular disease, which incorporates the collective knowledge of over 125 Mayo specialists in cardiology, preventive medicine, surgery, endocrinology, and dietetics.
FAM RJ 421 M4 2000

The paediatric cardiac surgical patient / McDonnell, Noelene -- 1999
FAM RJ 424 .M32

The parent's guide to children's congenital heart defects: what they are, how to treat them, how to cope with them / Kramer, Gerri Freid -- New York: Three Rivers Press, 2001.
Written by two parents of children with CHD in an easy-to-follow question-and-answer format, this guide provides information on diagnosis, treatment options, surgery, aftercare, and growing up with CHD, along with the voices of dozens of other parents who have lived through CHD and know what you’re going through. In these pages, you’ll find the information, empathy, and support you need to care for your child and thrive together.
FAM RJ 426 .C64 K73

Sarah's story / Winkel, Netty. -- [Queensland, Aust.]: The Queensland Centre for Congenital Heart Disease, 2000.
Born with a congenital heart defect, Sarah goes to hospital for an operation. This book explains to children what happens before and after a heart operation.
FAM RJ 426 .C64 W56

There are some things more important than baseball / Huesman, Tony. -- Dayton, OH: TenderHearts, 1996.
Robby learns all about the heart and heart attacks when his friend’s grandfather is hospitalized after having a heart attack. Appropriate for ages 6-10 years.
FAM RJ 421 .H84

To mend a broken heart: pediatric heart surgery -- Atlanta: Pritchett & Hull, 1998.
Simply written and illustrated, this interactive booklet explains a child’s heart surgery when there is a congenital heart defect. It covers: types of surgery; what is done before surgery; going to the hospital; what happens during surgery; and what to expect afterwards. This guide will help parents get ready to take a strong, active role in their child’s healing and recovery.
FAM RJ 424 .T6

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Sites Web 

Cardiologie - CHEO / Cardiology - CHEO

Explorons le Coeur – Sick Kids  / Exploring the heart – Sick Kids - Hospital for Sick Children

The Heart Institute Encyclopedia – Congenital Heart Defects - Cincinnati Children's Hospital Medical Center

National Association for Children's Heart Disorders

En Cœur: Fondation québécoise pour les enfants malades du cœur

Association Nationale des Cardiaques Congénitaux - France

Fondation des maladies de cœur – Ontario / Heart and Stroke Foundation

Living With a Congenital Heart Defect – National Heart, Lung and Blood Institute

Congenital Heart Defects – Medline Plus from the US National Library of Medicine

World Heart Federation

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Liaisons régionales 

Cardiology Clinic - CHEO / Clinique de cardiologie - CHEO
401, chemin Smyth
Ottawa, ON K1H 8L1
par les médecins renvoi / Doctor's referral required

Canadian Congenital Heart Alliance

Heart and Stroke Foundation of Canada
1525 Carling Avenue, Suite 110
Ottawa, ON K1Z 8R9
Resuscitation Certification and CPR Courses 1-877-473-0333

Fondation des maladies de cœur - Outaouais
2480, rue Galt Ouest, bureau 300
Sherbrooke, QC J1K 1L5
Téléphone sans frais: 1 800 En Cœur (362-6387)

Ce guide fournit du matériel médical pour informations seulement et ne vise pas à remplacer les conseils du médecin. Ces informations pourraient ne pas toujours s'appliquer aux situations individuelles.

Ce guide présente le matériel disponible à la b
ibliothèque de ressources familiales du CHEO. Ce n'est pas une liste complète. Votre bibliothèque publique locale pourrait aussi être en mesure de vous fournir des informations précieuses.

Si vous avez besoin des documents en formats alternatifs, s’il vous plaît contacter le bibliothèque au 613-737-7600 ext. 2157 ou à

Mise-à-jour : 2017 novembre
Liens verifiés : 2017 novembre


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