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Ressources – Le syndrome de Rett

Bibliothèque de ressources familiales Kaitlin Atkinson
Centre hospitalier pour enfants de l'est de l'Ontario                                                   Version imprimable
401, chemin Smyth
Ottawa, ON K1H 8L1
613-738-3942
library@cheo.on.ca
Suivez-nous @CHEOfrl


Liste de ressources pour les parents

Sites Web

Liaisons régionales

Liste de ressources pour les parents

Building bridges through sensory integration / Yack, Ellen -- Weston, ON: Print Three, 1998.
Written by three occupational therapists, this book offers a combination of theory and strategies. It is a useful tool for those working with young children, but also broad enough to be adapted for older children and adults.
FAM RJ 496 .S44 Y34 1998


Educational and therapeutic intervention in Rett syndrome -- Clinton, MD: International Rett Syndrome Assoc. 1995.
FAM RJ 506 .R47 E38

Keeping Katherine: a mother's journey to acceptance / Zimmermann, Susan -- New York: Three Rivers Press, 2004.
A story of personal transformation that reminds us that it isn’t what happens to us that shapes our humanity, but how we react, Keeping Katherine shows the unconditional love that exists in families and the gifts the profoundly disabled can offer to those who try to understand them.
FAM HQ 759.913 .Z56 2004

 
Pathways to learning in Rett syndrome / Lewis, J.E. -- London: Rett Syndrome Association (U.K.) 1996.
Parents and teachers of girls with Rett Syndrome will welcome this book, which offers a greater understanding of, and insight into, their potential to learn and develop.
FAM RJ 506 .R47 L48


The Rett syndrome handbook / Hunter, Kathy -- Clinton, MD: International Rett Syndrome Association, 2007.
A complete and comprehensive resource dealing with all facets of Rett Syndrome in words you can understand from those who understand. A valued resource, now expanded and revised in this second edition.
FAM RJ 506 .R47 H86 2007


Silent angels: the Rett syndrome story [VHS] -- International Rett Syndrome Association, 2000.
Silent Angels: The Rett Syndrome Story, hosted by Julia Roberts, tells about the amazing stories of families and researchers struggle leading to the discovery of the gene that causes the rare neurological disorder known as Rett syndrome.
FAM RJ 506 .R47 S54 VIDEO


Understanding Rett syndrome: a practical guide for parents, teachers, and therapists / Lindberg, Barbro -- Toronto: Hogrefe & Huber, 2006.
This book describes the difficulties and challenges of girls and women with Rett Syndrome.  It proposes solutions to help them in everyday life with regards to social, physical and ethical aspects.
FAM RJ 506 .R47 L56 2006


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Sites Web 

Ontario Rett Syndrome Association

Syndrome de Rett - CHEO / Rett Syndrome – CHEO

International Rett Syndrome Association

Rett Syndrome – MedlinePlus from the U.S. National Library of Medicine

Rett Syndrome Research Trust

Rett Syndrome Information Page – From the National Institute of Neurological Disorders and Stroke

Le syndrome de Rett – Fédération québécoise de l’autisme

Rett Syndrome – NORD: National Organization for Rare Disorders

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Liaisons régionales

Association québécoise du syndrome de Rett
602-6525 chemin de la Côte Saint-Luc
Côte St. Luc, Québec H4V 1G5
514-486-1311
aq_syndromederett@outlook.com

CHEO
401, chemin Smyth
Ottawa, ON K1H 8L1
613-737-7600
par les médecins renvoi / Doctors Referral Required


Ce guide fournit du matériel médical pour informations seulement et ne vise pas à remplacer les conseils du médecin. Ces informations pourraient ne pas toujours s'appliquer aux situations individuelles.

Ce guide présente le matériel disponible à la bibliothèque de ressources familiales du CHEO. Ce n'est pas une liste complète. Votre bibliothèque publique locale pourrait aussi être en mesure de vous fournir des informations précieuses.

Si vous avez besoin des documents en formats alternatifs, s’il vous plaît contacter le bibliothèque au 613-737-7600 poste 2157 ou à library@cheo.on.ca.

Mise-à-jour : 2016 mai
Liens verifiés : 2016 mai

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