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Ressources – Le syndrome de Rett

Bibliothèque de ressources familiales Kaitlin Atkinson

CHEO                                                                                                                     Version imprimable
401, chemin Smyth
Ottawa, ON K1H 8L1
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Liste de ressources pour les parents

Sites Web

Liaisons régionales

Liste de ressources pour les parents

Building bridges through sensory integration / Yack, Ellen -- Weston, ON: Print Three, 1998.
Written by three occupational therapists, this book offers a combination of theory and strategies. It is a useful tool for those working with young children, but also broad enough to be adapted for older children and adults.
FAM RJ 496 .S44 Y34 1998

Educational and therapeutic intervention in Rett syndrome -- Clinton, MD: International Rett Syndrome Assoc. 1995.
FAM RJ 506 .R47 E38

Keeping Katherine: a mother's journey to acceptance / Zimmermann, Susan -- New York: Three Rivers Press, 2004.
A story of personal transformation that reminds us that it isn’t what happens to us that shapes our humanity, but how we react, Keeping Katherine shows the unconditional love that exists in families and the gifts the profoundly disabled can offer to those who try to understand them.
FAM HQ 759.913 .Z56 2004

Pathways to learning in Rett syndrome / Lewis, J.E. -- London: Rett Syndrome Association (U.K.) 1996.
Parents and teachers of girls with Rett Syndrome will welcome this book, which offers a greater understanding of, and insight into, their potential to learn and develop.
FAM RJ 506 .R47 L48

The Rett syndrome handbook / Hunter, Kathy -- Clinton, MD: International Rett Syndrome Association, 2007.
A complete and comprehensive resource dealing with all facets of Rett Syndrome in words you can understand from those who understand. A valued resource, now expanded and revised in this second edition.
FAM RJ 506 .R47 H86 2007

Understanding Rett syndrome: a practical guide for parents, teachers, and therapists / Lindberg, Barbro -- Toronto: Hogrefe & Huber, 2006.
This book describes the difficulties and challenges of girls and women with Rett Syndrome.  It proposes solutions to help them in everyday life with regards to social, physical and ethical aspects.
FAM RJ 506 .R47 L56 2006

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Sites Web 

Ontario Rett Syndrome Association

Syndrome de Rett - CHEO / Rett Syndrome – CHEO

International Rett Syndrome Association

Rett Syndrome – MedlinePlus from the U.S. National Library of Medicine

Rett Syndrome Research Trust

Rett Syndrome Information Page – From the National Institute of Neurological Disorders and Stroke

Association québécoise du syndrome de Rett

Rett Syndrome – NORD: National Organization for Rare Disorders

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Liaisons régionales

Ontario Rett Syndrome Association
PO Box 50030
London, ON N6A 6H8

Association québécoise du syndrome de Rett
903, boulevard LaFayette
Longueuil, Québec J4K 3A8

401, chemin Smyth
Ottawa, ON K1H 8L1
par les médecins renvoi / Doctors Referral Required

Ce guide fournit du matériel médical pour informations seulement et ne vise pas à remplacer les conseils du médecin. Ces informations pourraient ne pas toujours s'appliquer aux situations individuelles.

Ce guide présente le matériel disponible à la bibliothèque de ressources familiales du CHEO. Ce n'est pas une liste complète. Votre bibliothèque publique locale pourrait aussi être en mesure de vous fournir des informations précieuses.

Si vous avez besoin des documents en formats alternatifs, s’il vous plaît contacter le bibliothèque au 613-737-7600 poste 2157 ou à

Mise-à-jour : 2018 juillet
Liens verifiés : 2018 juillet

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