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Decorative image with text: my complex life


A day in extraordinary lives: Caring for children with complex medical needs

Two mothers talk about the everyday challenges of caring for a child with complex medical needs and how they live outside of normal. 

Families with medically complex children face life-changing challenges that aren’t just medical.

The stories in this video show the strength and determination of these families, and why parents need support too.



We have identified six that seriously need addressing.

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Emotional Health

  • Grief (grieving the loss of unmet milestones in life).
  • Relationship Health (communication, co-parenting, finding time for intimacy and relationship planning).
  • Anxiety/depression
  • PTSD


  • Connecting with families with similar experiences.

Financial Burden

  • Navigating the complex web of federal, provincial and municipal supports in order to receive financial assistance.
  • Lack of ability to work because of the level of commitment to care and the unpredictability of the child’s needs.
  • Significant out of pocket expenses on equipment, therapy, and child care.

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  • Securing daycare with appropriate staffing
  • Ensuring proper support for child in a school environment


  • Finding accessible and inclusive activities/summer programs
  • Connecting through activity with child outside of caregiver role


  • Finding, retaining reliable worker for home support
  • Finding a reliable space for out of home respite

View a document that outlines all of the major challenges parents experience when caring for their child with complex medical needs.

Is there anything else I can do to help?

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