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Resources - Spina Bifida and Hydrocephalus

Kaitlin Atkinson Family Resource Library

CHEO                                                       Printer Friendly Version
401 Smyth Rd., Ottawa, ON K1H 8L1
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General Information and Resources

Web Sites

Local Contacts

General Information and Resources

Cerebral ventricular shunts: some questions, some answers -- Vancouver, BC: British Columbia's Children's Hospital, 1996.
FAM RC 391 .C47

Children with spina bifida: a parent's guide -- Bethesda, MD: Woodbine House, 1999.
Written by an expert team, this book addresses common concerns of parents about their child's development and condition.
FAM RJ 496 .S74 C476

A guide to hydrocephalus / McCowan, Anne Marie -- Toronto, ON: Spina Bifida & Hydrocephalus Association of Ontario, 1992.
This book explains what hydrocephalus is, the causes and the treatment.  The book also covers such topics as shunts and shunt failure; diagnostic tests; the consequences of hydrocephalus; professionals involved; and medications commonly used for seizure disorders.
FAM RC 391 .M32

L'hydrocéphalie: grandir et vivre avec une dérivation / Boels, Nathalie -- Montréal: Éditions du CHU Sainte-Justine, 2006.
Ce livre est destiné aux parents d'enfants hydrocéphales qui portent une dérivation ainsi qu'à leurs enseignants. Il vise à les aider à mieux comprendre cet état et à leur fournir de l'information médicale, des renseignements sur les conséquences de l'hydrocéphalie sur l'apprentissage, des suggestions pour améliorer la vie de l'enfant et des réponses à leurs questions.
FAM RC 391 .B63 2006

Hydrocephalus: a guide for patients, families and friends / Toporek, Chuck -- Sebatopol, CA: O'Reilly & Associates, 1999.
Text provides clear advice on living with hydrocephalus. Helps parents with choosing a neurosurgeon and what to expect in regards to treatments.
FAM RC 391 .T66

Living with spina bifida: a guide for families and professionals / Sandler, Adrian -- Chapel Hill, NC: University of North Carolina Press, 1997.
Addressing the challenges raised by spina bifida in a positive and practical manner, this book will aid anyone seeking the information necessary to build a strong, productive parent-professional partnership. It will serve as a resource for families as well as for doctors, health care workers, teachers, therapists, and other professionals involved in caring for children with spina bifida.
FAM RJ 496 .S74 S26

Spinabilities: a young person's guide to spina bifida -- Bethesda, MD: Woodbine House, 1997.
A guide to coping with the medical, self-care, and emotional issues of spina bifida, with an emphasis on becoming as independent as possible
FAM RJ 496 .S74 S695

Understanding spina bifida -- Toronto: Bloorview MacMillan Centre, 1998.
Whether you are a parent, service provider, or an individual with spina bifida, you need accurate, up to date information so you can make informed decisions regarding care, treatment and management in the present, as well as anticipate and plan for the future.
FAM RJ 496 .S74 U52

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Web Sites

Spina Bifida – MedlinePlus from the U.S. National Library of Medicine

Spina Bifida & Hydrocephalus Canada / Spina-bifida & d’hydrocéphalie Canada

Spina Bifida & Hydrocephalus Association of Ontario

L'Association de spina bifida et d'hydrocéphalie du Québec / Spina Bifida and Hydrocephalus Association of Québec

Kids Health – Information for Kids, Teens and Parents from the Nemours Foundation

Spina Bifida Association of America

Spina Bifida Fact Sheet – National Institute of Neurological Disorders and Stroke 

Spina Bifida:Types, Treatment and After-Care – About Kids Health

Hydrocephalus – MedlinePlus from the U.S. National Library of Medicine

Pediatric Hydrocephalus Foundation

Hydrocephalus Fact Sheet – National Institute of Neurological Disorders and Stroke

Hydrocephalus and Treatment: Shunts and Endoscopic Third Ventriculostomy – About Kids Health / Hydrocéphalie et traitement: Shunts et ventriculostomie endoscopique du troisième ventricule – About Kids Health

Hydrocephalus – Healthline

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Local Contacts

Spina Bifida & Hydrocephalus Ontario
Ottawa contact: 613-841-8173 

Spina Bifida and Hydrocephalus Association of Québec / L'Association de spina bifida et d'hydrocéphalie du Québec

This guide provides medical material for information purposes only and is not intended to replace the advice of your physician. The information may not always apply to your individual situation.

The guide represents material available in the Family Resource Centre collection at CHEO. It is not intended to be an exhaustive list. Your local public library may also be able to provide valuable information.

If you require materials in alternative formats, please contact the library at 613-737-7600 ext. 2157 or at

Last Updated : June 2016
Links Tested : June 2016

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