Kaitlin Atkinson Family Resource Library
Children's Hospital of Eastern Ontario Printer Friendly Version
401 Smyth Rd., Ottawa, ON K1H 8L1
613-738-3942
library@cheo.on.ca
Follow us @CHEOfrl
General Information and Resources
Web Sites
Local Contacts
General Information and Resources
Cerebral ventricular shunts: some questions, some answers -- Vancouver, BC: British Columbia's Children's Hospital, 1996.
FAM RC 391 .C47
Children with spina bifida: a parent's guide -- Bethesda, MD: Woodbine House, 1999.
Written by an expert team, this book addresses common concerns of parents about their child's development and condition.
FAM RJ 496 .S74 C476
A guide to hydrocephalus / McCowan, Anne Marie -- Toronto, ON: Spina Bifida & Hydrocephalus Association of Ontario, 1992.
This book explains what hydrocephalus is, the causes and the treatment. The book also covers such topics as shunts and shunt failure; diagnostic tests; the consequences of hydrocephalus; professionals involved; and medications commonly used for seizure disorders.
FAM RC 391 .M32
L'hydrocéphalie: grandir et vivre avec une dérivation / Boels, Nathalie -- Montréal: Éditions du CHU Sainte-Justine, 2006.
Ce livre est destiné aux parents d'enfants hydrocéphales qui portent une dérivation ainsi qu'à leurs enseignants. Il vise à les aider à mieux comprendre cet état et à leur fournir de l'information médicale, des renseignements sur les conséquences de l'hydrocéphalie sur l'apprentissage, des suggestions pour améliorer la vie de l'enfant et des réponses à leurs questions.
FAM RC 391 .B63 2006
Hydrocephalus: a guide for patients, families and friends / Toporek, Chuck -- Sebatopol, CA: O'Reilly & Associates, 1999.
Text provides clear advice on living with hydrocephalus. Helps parents with choosing a neurosurgeon and what to expect in regards to treatments.
FAM RC 391 .T66
Living with spina bifida: a guide for families and professionals / Sandler, Adrian -- Chapel Hill, NC: University of North Carolina Press, 1997.
Addressing the challenges raised by spina bifida in a positive and practical manner, this book will aid anyone seeking the information necessary to build a strong, productive parent-professional partnership. It will serve as a resource for families as well as for doctors, health care workers, teachers, therapists, and other professionals involved in caring for children with spina bifida.
FAM RJ 496 .S74 S26
Spinabilities: a young person's guide to spina bifida -- Bethesda, MD: Woodbine House, 1997.
A guide to coping with the medical, self-care, and emotional issues of spina bifida, with an emphasis on becoming as independent as possible
FAM RJ 496 .S74 S695
Understanding spina bifida -- Toronto: Bloorview MacMillan Centre, 1998.
Whether you are a parent, service provider, or an individual with spina bifida, you need accurate, up to date information so you can make informed decisions regarding care, treatment and management in the present, as well as anticipate and plan for the future.
FAM RJ 496 .S74 U52
Back to top
Web Sites
Spina Bifida – MedlinePlus from the U.S. National Library of Medicine
Spina Bifida & Hydrocephalus Canada / Spina-bifida & d’hydrocéphalie Canada
Spina Bifida & Hydrocephalus Association of Ontario
L'Association de spina bifida et d'hydrocéphalie du Québec / Spina Bifida and
Hydrocephalus Association of Québec
Kids Health – Information for Kids, Teens and Parents from the Nemours
Foundation
Spina Bifida Association of America
Spina Bifida Fact Sheet – National Institute of Neurological Disorders and
Stroke
Spina Bifida:Types, Treatment and After-Care – About Kids Health
Hydrocephalus – MedlinePlus from the U.S. National Library of Medicine
Pediatric Hydrocephalus Foundation
Hydrocephalus Fact Sheet – National Institute of Neurological Disorders and
Stroke
Hydrocephalus and Treatment: Shunts and Endoscopic Third Ventriculostomy – About Kids Health / Hydrocéphalie et traitement: Shunts et ventriculostomie endoscopique du troisième ventricule – About Kids Health
Hydrocephalus – Healthline
Back to top
Local Contacts
Spina Bifida & Hydrocephalus Ontario
1-800-387-1575
Ottawa contact: 613-841-8173
provincial@sbhao.on.ca
Spina Bifida and Hydrocephalus Association of Québec / L'Association de spina
bifida et d'hydrocéphalie du Québec
1-800-567-1788
info@spina.qc.ca
This guide provides medical material for information purposes only and is not intended to replace the advice of your physician. The information may not always apply to your individual situation.
The guide represents material available in the Family Resource Centre collection at CHEO. It is not intended to be an exhaustive list. Your local public library may also be able to provide valuable information.
If you require materials in alternative formats, please contact the library at 613-737-7600 ext. 2157 or at library@cheo.on.ca.
Last Updated : June 2016
Links Tested : June 2016