Resources - Pain & Chronic Illness
Kaitlin Atkinson Family Resource Library
Children's Hospital of Eastern Ontario
401 Smyth Rd., Ottawa, ON K1H 8L1
Resource List for Parents
General Information & Resources for Parents
Amanda's rainbow: young children's pain ages 2-10/ by Hillstrom, Beverly -- Port Moody, BC: Hillstrom Pub, 2002.
A book to assist parents, doctors and nursing staff to assess young children's pain using the colours of the rainbow.
FAM RJ 365 .H54
Be the boss of your pain: self-care for kids/ byCulbert, Timothy--Minneapolis:Free Spirit Pub, 2007.
This book speaks to kids ages 8 and up with this message: Your body, mind, and spirit—working together—have amazing abilities to help you control how your body feels, even when you have pain.
FAM RJ 365 .C85 2007
Ces enfants trop calmes: sémiologie de la douleur du petit enfant / edited by Francois,
Pierre – France: Institut Electricite Sante, 1991.
A l'aide d'images tournées par Pierre François exclusivement en conditions réelles, CES ENFANTS TROP CALMES montre la non-spécificité des signes émotionnels, illustre les signes directs de la douleur en référence aux items de l'échelle DEGR, et met en lumière cette composante essentielle, trop souvent confondue avec la dépression : l'atonie psycho-motrice. Les conditions d'un examen fructueux sont analysées dans le film TALAMOU et les réponses à la douleur dans MA DOULEUR A ZERO
FAM RJ 365 .C47 VIDEO
A child in pain: how to help, what to do/ by Kuttner, Leora -- Hartley & Marks, 1996.
The many methods and medications discussed in this book will enable you and your child to cope with both minor and more serious pain from injuries or childhood and teenage diseases.
FAM RJ 365 .K87 1996
Children with complex and continuing health needs: the experiences of children, families and care staff/ by Hewitt-Taylor, Jaqui --London: Jessica Kingsley Publishers, 2008.
FAM RJ 380 .H49 2008
Conquering your child's chronic pain: a pediatrician's guide to reclaiming a normal childhood/ by Zeltzer, Lonnie K. --New York: HarperCollins, 2005.
Provides help for child or adolescent to regain power over pain and restore function and well-being. Covers many topics including reactivating the body's natural pain control, effective medications, and relaxation techniques.
FAM RJ 365.Z45 2005
Complex pain: what to do when pain won't go away / Edited by BC Children's Hospital Foundation – Vancouver: BC Children’s Hospital Foundation, 2008.
In this video you will meet three teens who have become experts in mastering pain. They will explain the impact that complex pain can have on families and on quality of life.
FAM RJ 365 .C66 2003 DVD
Complex regional pain syndrome (CRPS) explained : for teenagers by teenagers : info that clicks/ by Lauder, G.R. and Massey, Roslyn --Bloomington,Indiana: Xlibris Corporation, 2010.
FAM RJ 365 .G38 2010
La douleur de l'enfant/ by Gauvain-Piquard, Annie -- Paris: Calmann-Lévy, 1993.
Cette livre parle de l’expérience d’Aurélie quand elle arrive à l’hôpital avec son bras cassé.
FAM RJ 365 .G38 1993.
Easy for you to say: Q & As for teens living with chronic illness or disability / by Kaufman, Miriam–Toronto,ON: Key Porter, 1995.Answers to many questions teens may have about their chronic illness or disability. Appropriate for Ages: 12-17 years.
FAM RJ 380 .K38
Enfants adolescents malades : aux jeunes qui se battent dans la vie--Montreal,QC: Radio Canaada, 1992.
Entrevues avec des adolescents qui ont des maladies chroniques, comme le cancer, le diabète, l'insuffisance rénale.
Pour les enfants de 9 ans aux adultes
FAM RJ 380 .E53 VIDEO
Growing up strong / by Burkett, Mary --Columbia,SC:R.L. Bryan, 1999.
What every parent should know about self-concept in children with long-term illnesses.
FAM RJ 380 .B87
Grrrouch! : pain is like a grouchy bear / by Morgan, Cathryn and Beshara, Crystal --Renfrew,Ontario: General Store Publishing House, 2011.
Told from a child's perspective, the tone of the story is calm and compassionate, yet whimsical too. The rhyming text is paired with vibrant illustrations by artist Crystal Beshara that are designed to echo emotions, to trigger discussion, and to emphasize how other children learn to cope with their pain. Appropriate for Ages: 6-10 years.
FAM RJ 365 .M67 2011
Hi, my name is Jack: a book for the healthy siblings of chronically ill children/ by Beall-Sullivan, Christina --Park City,UT: Bopar Books, 2005.
Eight-year-old Jack tells what it is like to have a sister who is chronically ill. Appropriate for Ages: 4-8 years.
FAM RJ 380 .B42 2005
How it feels to fight for your life/ by Krementz, Jill –Boston: Little, Brown, 1989.
Fourteen children tell how they battle pain, uncertainty, and the changes brought about in their lives by serious illness such as cancer, severe burns, asthma, and kidney failure.
FAM RJ 380 .K74
Teens face to face with chronic illness / by Le Vert, Suzanne – New York: Julian
Messner Press, 1993.
Stories from teenagers about their chronic illness and a guide on how to cope.
FAM RJ 380 .L48
The pain manual: principles and issues in cancer pain management/ by Librach, S. Lawrence --Montreal: Pegasus Healthcare International, 1997.
FAM RC 263 .L52
Parenting children with health issues: essential tools, tips, and tactics for raising kids with chronic illness, medical conditions and special healthcare needs / by Cline, Foster -- Golden, CO: Love & Logic Press, 2007.
Offers parents of children with chronic health issues practical strategies and suggestions to help them cope with their child's condition and the constant physical and emotional challenges they face.
FAM RJ 380 .C62 2007
Relieve your child's chronic pain: a doctor's program to easing headaches, abdominal pain, fibromyalgia, juvenile rheumatoid arthritis, and more / by Krane, Elliot J -- New York: Simon & Schuster, 2005.
This book will help the parent recognize, measure, and evaluate their child's pain properly; learn about the many alternative pain-management approaches that can be used at home and more.
FAM RJ 365 .K72 2005
Sick all the time: kids with chronic illness / by Chastain, Zachary -- Broomall, PA: Mason Crest Publishers, 2011.
Kids just want to be kids. They want to spend time with their friends and enjoy life. When a kid has a chronic illness, though, it can be a lot more difficult to do those things.
FAM RJ 380 .C43 2010
Soothing your child's pain: from teething and tummy aches to acute illnesses and injuries: how to understand the causes and ease the hurt / by Gorfinkle, Kenneth -- Chicago, IL: Contemporary, 1998.
Well-written and concise, this book contains practical information about coping with the everyday experience of pain in children.
FAM RJ 365 .G67
Taking the lead : dancing with chronic illness / by Giroux, Louise -- Kelowna, BC: Northstone Pub Inc., 1998.
FAM RJ 380 .G57
When your child is technology assisted: a home care guide for families / by Kahn, Paul --Boston: New England Medical Center, 1997.
FAM RJ 380 .K33
Young people and chronic illness: true stories, help, and hope / by Huegel, Kelly -- Minneapolis, MN: Free Spirit Pub., 1998.
Stories from adolescents about their chronic illness and a guide on how to cope. Appropriate for Ages 10-17 years.
FAM RJ 380 .H84