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Ressources - La douleur et les maladies chroniques 

Bibliothèque de ressources familiales Kaitlin Atkinson

Centre hospitalier pour enfants de l’est de l’Ontario                                                   version imprimable
401, chemin Smyth
Ottawa, ON K1H 8L1
613-738-3942
library@cheo.on.ca
Suivez-nous @CHEOfrl

Liste de ressources pour les familles

Sites Web

YouTube

Apps

Liaison régionale

Liste de ressources pour les familles

Amanda's rainbow: young children's pain ages 2-10 / Hillstrom, Beverly -- Port Moody, BC: Hillstrom Pub, 2002.
Amanda's Rainbow is an easy to use assessment tool that allows children to communicate their levels of pain to adults. The unique thing about this assessment tool is that it was created by a child for children.
FAM RJ 365 .H54

Be the boss of your pain: self-care for kids / Culbert, Timothy -- Minneapolis: Free Spirit Pub, 2007.
This book speaks to kids ages 8 and up with this message: Your body, mind, and spirit — working together — have amazing abilities to help you control how your body feels, even when you have pain.
FAM RJ 365 .C85 2007

A child in pain: how to help, what to do / Kuttner, Leora -- Hartley & Marks, 1996.
This book provides the reader with the specific language that will reassure a child in pain, whether you know the child or not, as well as methods to help the child emotionally as well as physically. It clearly spells out what you, the child, or both of you together can do to manage or ease the pain.
FAM RJ 365 .K87 1996

Children with complex and continuing health needs: the experiences of children, families and care staff / Hewitt-Taylor, Jaqui -- London: Jessica Kingsley Publishers, 2008.
Focusing on the real life experiences of children and their families, this book provides valuable insight into living with complex and continuing health needs. The author highlights the importance of seeing each child as an individual, with the same rights and needs as any other person, rather than defining them by their health condition. The book includes case studies to illustrate the experiences of children, parents, siblings and extended families, as well as professionals in health and social care.
FAM RJ 380 .H49 2008

Conquering your child's chronic pain: a pediatrician's guide to reclaiming a normal childhood / Zeltzer, Lonnie K. -- New York: HarperCollins, 2005.
Provides help for child or adolescent to regain power over pain and restore function and well- being. Covers many topics including reactivating the body's natural pain control, effective medications, and relaxation techniques.
FAM RJ 365.Z45 2005

Complex pain: what to do when pain won't go away [DVD] / Vancouver: BC Children’s Hospital Foundation, 2008.
In this video you will meet three teens who have become experts in mastering pain. They will explain the impact that complex pain can have on families and on quality of life.
FAM RJ 365 .C66 2003 DVD

Complex regional pain syndrome (CRPS) explained: for teenagers by teenagers: info that clicks / Lauder, G.R. and Massey, Roslyn -- Bloomington, Indiana: Xlibris Corporation, 2010.
This book provides clear information for teenagers who develop Complex Regional Pain Syndrome (CRPS). It can be used as a tool to aid the early recognition of CRPS and implement the necessary team approach to management. Medical terms have been explained in a way that can be easily understood.
FAM RJ 365 .G38 2010

La douleur de l'enfant / Gauvain-Piquard, Annie -- Paris: Calmann-Lévy, 1993.
Cette livre parle de l’expérience d’Aurélie quand elle arrive à l’hôpital avec son bras cassé.
FAM RJ 365 .G38 1993

Easy for you to say: Q & As for teens living with chronic illness or disability / Kaufman, Miriam -- Toronto, ON: Key Porter, 1995.
Answers many questions teens may have about their chronic illness or disability.  Appropriate for Ages: 12-17 years
FAM RJ 380 .K38

Grrrouch!: pain is like a grouchy bear / Morgan, Cathryn and Beshara, Crystal -- Renfrew, ON: General Store Publishing House, 2011.
This book encourages children to communicate their feelings and to explore, visualize and describe their pain using words and images to validate their personal pain experiences. Children of various ages and cultures are shown interacting not only with their pain, but with supportive people in their everyday environment.
FAM RJ 365 .M67 2011

Hi, my name is Jack: a book for the healthy siblings of chronically ill children / Beall-Sullivan, Christina -- Park City, UT: Bopar Books, 2005.
Eight-year-old Jack tells what it is like to have a sister who is chronically ill. Appropriate for ages 4-8 years.
FAM RJ 380 .B42 2005

How it feels to fight for your life / Krementz, Jill -- Boston: Little, Brown, 1989.
Fourteen children tell how they battle pain, uncertainty, and the changes brought about in their lives by serious illness such as cancer, severe burns, asthma, and kidney failure.
FAM RJ 380 .K74

Managing your child's chronic pain / Palermo, Tonya M.; Law, Emily F. -- Oxford, New York: Oxford University Press, 2015.
Managing Your Child's Chronic Pain is an invaluable resource for parents who wish to learn how to help their children and families cope with persisting pain using cutting-edge, scientifically proven treatment tools and techniques. The easy-to-implement strategies in this book provide parents with practical instructions for pain management that will enable children to return to school, participate in sports and other activities, and pursue healthy and active social lives.
FAM RJ 365 .P27 2013

Mon enfant a une maladie chronique: stratégies, ressources, moyens / Chartré, Marie-Eve; Gagné, Johanne. -- Montréal: Éditions du CHU Sainte-Justine, 2014.
Dès l'annonce du diagnostic, la maladie chronique d'un enfant devient « l'affaire » de toute la famille. Ce livre permet aux parents de mieux comprendre les étapes de ce cheminement émotionnel et social pour l'enfant malade, la fratrie, la famille, le couple comme pour eux-mêmes en tant qu'individus et
d'accompagner chacun en puisant à la fois dans les ressources personnelles et extérieures dont ils peuvent bénéficier. Il met aussi de l'avant l'étroite collaboration qui doit prévaloir entre l'équipe soignante, la travailleuse sociale et la famille afin de rendre ce parcours de vie le plus confortable possible.
FAM RJ 380 .G33 2014

The pain manual: principles and issues in cancer pain management / Librach, S. Lawrence -- Montreal: Pegasus Healthcare International, 1997.
FAM RC 263 .L52

Parenting children with health issues: essential tools, tips, and tactics for raising kids with chronic illness, medical conditions and special healthcare needs / Cline, Foster. -- Golden, CO: Love & Logic Press, 2007.
Offers parents of children with chronic health issues practical strategies and suggestions to help them cope with their child's condition and the constant physical and emotional challenges they face.
FAM RJ 380 .C62 2007

Pour en savoir plus sur la douleur de l'enfant / Galland, Francoise; Annequin, Daniel. -- Paris: Sparadrap, 2003.
Ce film de formation permet de découvrir ou d'introduire les notions essentielles sur la douleur de l'enfant. Les points forts du film : un film accessible a` tous, ni trop technique, ni trop médical; la vision d'une association non spécialiste du traitement de la douleur qui privilégie un regard global sur les besoins de l'enfant douloureux et de ses parents, qui évite de réduire le propos a` un ou deux aspects techniques mais valorise l'indispensable complémentarité´ des moyens.
FAM RJ 365 .G25 2003 DVD

Relieve your child's chronic pain: a doctor's program to easing headaches, abdominal pain, fibromyalgia, juvenile rheumatoid arthritis, and more / Krane, Elliot J -- New York: Simon & Schuster, 2005.
This book will help the parent recognize, measure, and evaluate their child's pain properly; learn about the many alternative pain-management approaches that can be used at home and more.
FAM RJ 365 .K72 2005

Sick all the time: kids with chronic illness / Chastain, Zachary -- Broomall, PA: Mason Crest Publishers, 2011.
Kids just want to be kids. They want to spend time with their friends and enjoy life. When a kid has a chronic illness, though, it can be a lot more difficult to do those things.
FAM RJ 380 .C43 2010

Soothing your child's pain: from teething and tummy aches to acute illnesses and injuries: how to understand the causes and ease the hurt / Gorfinkle, Kenneth -- Chicago, IL: Contemporary, 1998.
This book contains practical information about coping with the everyday experience of pain in children.
FAM RJ 365 .G67

Taking the lead: dancing with chronic illness / Giroux, Louise -- Kelowna, BC: Northstone Pub Inc., 1998.
This is an empowering story of 3 people who live with chronic illness. The author wants to empower those who live with chronic illness and guarantee that they will never become their disease.
FAM RJ 380 .G57

Teens face to face with chronic illness / Le Vert, Suzanne -- New York: Julian Messner Press, 1993.
This book contains stories from teenagers about their chronic illness and a guide on how to cope.
FAM RJ 380 .L48
 
When your child is technology assisted: a home care guide for families / Kahn, Paul -- Boston: New England Medical Center, 1997.
This guide is for parents of children with disabilities who require the help of a machine or device for some life-sustaining activity such as breathing or eating. It includes chapters on preparing for the child's return home including parent training, setting up the child's room, safety precautions, changing the physical structure of the home, marital adjustment to home care and helping siblings, respectively.
FAM RJ 380 .K33

Young people and chronic illness: true stories, help, and hope / Huegel, Kelly -- Minneapolis, MN: Free Spirit Pub., 1998.
This book is a source of strength, inspiration, and sound advice for young people diagnosed with chronic illnesses. It helps them learn to cope, know they're not alone, and make the most of the wonderful opportunities that lie ahead.
FAM RJ 380 .H84

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Sites Web

Acute Pain Service - CHEO

Gestion de votre douleur chronique - CHEO / Managing Your Chronic Pain - CHEO

Douleur - SickKids / Pain - SickKids

Association québécoise de la douleur chronique

Caring for a Seriously Ill Child – Kids Health – For Kids, Teens and Parents from the Nemours Foundation

Living with a Chronic Illness or Disability – Healthy Children from the American Academy of Pediatrics

La douleur de l'enfant: la reconnaître, l'évaluer, la traiter – Pédiadol

Chronic Pain Association of Canada

PainBytes – Pain Management Network

Chronic Pain Australia

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YouTube

CHEO’s Chronic Pain Team – CHEOvideos

What is Chronic Pain? – CHEOvideos

Exploring Pain Management Strategies for Infants – CHEOvideos

Apps

Catch My Pain
●Sanovation AG
● Français, Allemand, Anglais, Espagnol, Néerlandais / English, French, Dutch, German, Spanish
● gratuit mais offre achats in-app / Free with in-app purchases
● Classé / Rated 12+
● Dernière mise à jour 2016 mars / Last updated March 2016
● Google Play: Afin d'être en mesure de traiter efficacement la douleur, les experts médicaux recommandent de tenir un journal de la douleur.  Le journal primé "Catch My Pain" vous permettez de créer des dessins détaillés et en couleurs de vos douleurs afin d'exprimer la localisation et l'intensité de celles-ci, suivre l'évolution de votre douleur sur un graphique établi à partir de vos dessins de douleur et beaucoup plus. / Keep a medical health record, track your pain, diagnosis, symptoms and medication and share it with your doctor.  Medical experts recommend you keep a pain diary to be able to treat pain effectively. The award winning "Catch My Pain" app allows you to visualize and monitor your pain by creating detailed drawings and by tracking other relevant information. The diary will help you to explain your pain to any medical practitioner. In addition, you can exchange insights with similar patients.
● Disponible via / Available from Google Play & iTunes

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Liasion régionale

Chronic Pain– CHEO / La douleur chronique
613-737-7600
By physician’s referral / par les médecins renvoi

Association québécoise de la douleur chronique
2030, boul. Pie-IX, bureau 403
Montréal (Québec) H1V 2C8
514-355-4198
855-230-4198
téléc: 514-355-4159
aqdc@douleurchronique.org

Ce guide fournit du matériel médical pour informations seulement et ne vise pas à remplacer les conseils du médecin. Ces informations pourraient ne pas toujours s'appliquer aux situations individuelles.

Ce guide présente le matériel disponible à la bibliothèque de ressources familiales du CHEO. Ce n'est pas une liste complète. Votre bibliothèque publique locale pourrait aussi être en mesure de vous fournir des informations précieuses.

Si vous avez besoin des documents en formats alternatifs, s’il vous plaît contacter le bibliothèque au 613-737-7600 poste 2157 ou à library@cheo.on.ca.

Mise-à-jour : 2016 mai
 Liens verifiés : 2016 mai

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