Neuromuscular Clinic

About the Neuromuscular Clinic

CHEO's Neuromuscular Clinic sees children and youth with neuromuscular disorders including:

muscular dystrophy
spinal muscular atrophy
congenital myopathy
other neuropathy

Make a referral

We accept referrals from:

physician referral is required.
transfers from other neuromuscular services or clinics at CHEO

Please mail or fax your referral form to:

Neuromuscular Clinic, CHEO
401 Smyth Road
Ottawa, ON K1H 8L1
Fax: 613-738-4879

Frequently asked questions

Who should I contact if I am worried or have questions?

For any emergency, call 911. This includes emergencies involving your child’s neuromuscular problem.

For patients who are being followed by the Neuromuscular Clinic: For patients who have seen a CHEO Neuromuscular specialist, call your Nurse Case Manager at 613-737-7600 ext 4504 or send a direct message to them through MyChart. This is not for urgent calls. Our nurses are here to give support, education and will work to coordinate your child’s care. It may take 3-5 days for us to get back to you (and sometimes longer during holidays). We will return the most serious calls first. Please avoid leaving multiple messages for the same issue.
For patients who are waiting for their first visit with the Neurology Clinic: Please do not call the nurses’ line if you have not yet been seen by a CHEO Neuromuscular specialist. Please call your family doctor, pediatrician or visit your nearest walk-in clinic for everything else.

How can I make an appointment?

All patients must be referred by a Physician or Nurse Practitioner. After a referral is received, we will notify the referring Physician or Nurse Practitioner whether the referral has been accepted or denied. If accepted, we will provide an estimated wait time. This wait time can vary based on demand and urgency.

Once we have an appointment spot to offer, our Scheduling Team will call you to schedule an appointment.

Missed Appointments & Late Cancellations
CHEO is committed to providing timely care for children, youth, and families. If this is your first appointment in a clinic or department and you miss two appointments without giving at least 48 hours’ notice, your referral will be returned to the care provider who submitted it. They can then follow up with you to confirm whether you still need or wish to proceed with the referral.

We understand life happens and unforeseen events come up. Please notify us as early as possible by calling 613-737-7600 x2222 — ideally at least 48 hours in advance — if you need to cancel or reschedule. This helps us offer the appointment to another family and keep wait times as short as possible. A cancellation 48 hours or more in advance will not count as a missed appointment.

Contact us

If you are wanting to confirm if referral has been received, to reschedule or to cancel an appointment that has been booked, please call the CHEO scheduling team at 613-737-7600 x2222.
If you have other questions or concerns, you can contact the Neuromuscular clinic nurse at 613-737-7600 extension 4504.