Autism

September 

September 28,2019

Thank you for your interest in CHEO.

The government will launch its new Ontario Autism Program by April 2020.

Until then, there are two streams of service under the current Ontario Autism Program. If you are currently in-service with us under the 2018-19 program, the government has decided that your plans will be extended. Please contact us to learn more.

For those who were still on the Ontario Autism Program waitlist as of April 1, 2019, the Ministry of Children, Community and Social Services has also started to issue cheques (known as Childhood Budgets).

CHEO does not manage the autism waitlist, the government does. We also don’t manage the Childhood Budgets; the government decides who comes off the waitlist and who gets a cheque.

You can choose to buy autism fall services packages from CHEO when you receive your Childhood Budget. If you have questions about this, please call us.

Our team of autism experts listened to families to develop these fall services packages. We’ve incorporated feedback from families currently in-service and from those who attended our family night events.

One thing we know for sure is that families want high-quality, effective services. By bundling different types of services together, CHEO is able to lower the costs to families in order to maximize Childhood Budgets.

In all other parts of CHEO today, we deliver services based on clinical need and greatest urgency but this is not how the government has set-up the Ontario Autism Program now or in the past. We are still learning how to operate in a fee-for-service system and we are doing our best to minimize negative impacts on families. We know this is a difficult time for many of you.

Once the government decides how the Ontario Autism Program will operate after April 1, 2020, we will determine what services we can offer long-term.  We remain committed to involving families and the community at-large in that decision once we learn more about the government’s new plan.  

Please contact us if you have questions at all. We know this is a stressful time for families and we are here to help you.

July

July 29, 2019 

Today, the Ministry of Children, Community and Social Services (MCCSS)  announced steps to move the Ontario Autism Program to a needs-based model. Families of children and youth currently in service with CHEO are invited to discuss their preferences for extending their current plans by speaking with their senior therapist or family support worker.

If you are unsure who to speak to, email autismemail@cheo.on.ca.  Families waiting for service will receive childhood budgets to purchase services and can choose CHEO or contact us for more information.

Read the MCSS news release.  

April

April 29, 2019

The Ministry of Children, Community and Social Services (MCCSS) has updated its website to share information about opportunities for public consultation on the new Ontario Autism Program. Specifically, the public can now register to attend town hall meetings by telephone during the month of May. For more information and to register for a MCCSS telephone town hall, visit its website.

April 24, 2019

Today, CHEO published its spring and summer autism services.

Earlier this year, the government of Ontario announced changes to its Ontario Autism Program (OAP). In short, over the next 18 months everyone with an autism diagnosis will receive money directly from the government to purchase autism services of their choice.

CHEO has had to create a fee schedule to deliver its autism services under the new OAP. The government is planning future consultations with families and therefore we expect the OAP to continue to be updated over the next several months. In the meantime, some families will be receiving their money from the government and may want to choose CHEO as their service delivery partner. Therefore, we have developed a Spring and Summer program with offerings to meet varying budgets and needs. This is not our long-term programming. The Spring and Summer offering will expire in September.

We will be hosting information sessions to help families navigate these offerings. Visit the Information sessions page to learn more and RSVP.

Those already in service under the OAP have been extended to summer and fall and do not need to buy autism services until the end of their current plan.

Here is a letter from Alex Munter, CHEO's CEO and President.

March

March 21, 2019

Today, the Ministry of Children, Community and Social Services (MCCSS) made the following announcement: “Ontario enhancing support for children with autism.” These are significant changes to their plan announced on February 6. The ministry will soon be issuing directions to regional autism providers like CHEO regarding next steps. We know that families are trying to make plans for the coming months so it is our intention to announce our spring and summer programs as soon as the ministry provides more details about the changes announced today.

According to today's news, families currently in-service will be eligible for extended services. If you are currently in-service, please contact your family support worker next week as by then we'll have more information from the ministry about this to support you.

March 13, 2019

We have been advised by the Ministry of Children, Community and Social Services (MCCSS) that they will shortly be providing information packages to families‎ about childhood budgets and will begin to transition to the new model of funding for the OAP.

While CHEO will continue its role providing diagnoses through the diagnostic hub, in the new system CHEO is being removed from its previous responsibility of managing the referral process and waitlist for the Ontario Autism Program. Therefore, the information package will include details on how to register for the new program. We are here to support you through this process.

Meanwhile, CHEO is negotiating with MCCSS regarding our 2019-20 budget and performance obligations. Throughout this process, we continue to advocate for increased funding and support for kids with ASD and their families. By April 1, we expect to be in a position to announce our Autism Program's service offerings for spring and summer. We recognize that this transition period is very difficult for families and will do everything we can to support you.

After April, we will begin the process of working with families, staff and the community to co-design CHEO's longer-term service offerings. If you would like to be involved in these discussions, please email autismemail@cheo.on.ca.

February 

February 26, 2019

The Ministry of Children, Community and Social Services informed us that they've updated their website to include more detailed information about the childhood budget and the income test.

February 25, 2019

Today, the Deputy Minister of Children, Community and Social Services issued a statement to clarify its instructions to autism agencies in October 2018. It is common practice to receive a directive from the government about the autism program. Last fall and again today, the government identified which children can access evidence-based behavioural services (priority groups). This directive will change, yet again, with the rollout of the new OAP after April 1, 2019. While CHEO does not make any of the decisions that lead to access challenges in the OAP, we do have to explain the Ministry's directives to families. If in attempt to explain the government's directives, we have contributed to a family's frustration about their situation - we apologize. Our only goal is to support families as best we can within the parameters we are given.

February 13, 2019

CHEO leadership reached out to the Autism Family Advisory Committee to indicate that family consultations will be integral to help reshape our program in the current environment. We will share more information about opportunities to share public feedback about our programs, after we learn more information from the Ministry.

February 7, 2019

CHEO leadership met with staff to indicate that our delivery model for offering behavioural interventions needs to change to fit within the government's new parameters. We don't have the answers about what this will look like, yet. We have been told by the government that 2019-2020 is a phase-in year although we do not yet have the details of what that means or how it will work. We have been advocating to the Ministry for high-quality, evidence-based autism services.

In-service families

CHEO staff are sharing the government's FAQs (frequently asked questions) with families currently in service. More information is found here.

Operational planning for CHEO's diagnostic hub

We are pleased to receive funding to expand the regional diagnostic hub for Eastern Ontario that we manage, which covers a large area from Oshawa to Hawkesbury. Based on direction from the Ministry, we are already working with our partners including Kids Inclusive (Kingston) Quinte Children's Centre (Belleville), Five Counties (Peterborough) and Grandview Kids (Oshawa) to ramp-up diagnoses across the region. More details to follow.

Operational planning for autism behavioural intervention services and supports (2019-20 and 2020-21)

We have not begun detailed operational planning yet, as we are still awaiting more information and guidance from the Ministry of Children, Community and Social Services. We expect to meet soon with its Regional Office to understand what's next for CHEO in particular.

February 6, 2019

In response to the news, our CEO provided the following statement about the investment in diagnostic hubs, “At CHEO, we've worked hard to cut the wait for an autism diagnosis from well over a year to 24 weeks. With today's announcement, we will be able to further speed up diagnosis.” With respect to the announcement, Alex Munter said, “We look forward to working with Minister MacLeod, families and our staff to see how CHEO can be part of the new provincial autism strategy.”

More updates to follow as information is available. Please bookmark this page for future reference.