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Inflammatory bowel disease (IBD)

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Below you will find a variety of resources to help you better understand, cope with and/or support someone with inflammatory bowel disease (IBD).

Resources for children, youth and families

 Books
  • Your child with inflammatory bowel disease: a family guide for caregiving / North American Society for Pediatric Gastroenterology, Hepatology and Nutrition - Baltimore: Johns Hopkins University Press, 2010. FAM RC 862 .E52 Y68 2010
    • This book provides parents with practical advice on how to tell their children about their IBD and discusses the challenges children may face at school and in their social lives, especially as they grow older.
  • Guts, by Raina Telgemeier [En français : Cougage par Raina Telgemeier]
  • The Anxiety Workbook for Teens: Activities to Help You Deal with Anxiety and Worry, by Lisa M. Schab LCSW
  • The Chronic Pain and Illness Workbook for Teens: CBT and Mindfulness-Based Practices to Turn the Volume Down on Pain, by Rachel Zoffness MS PhD
  • Maladie chronique : Ce n’est pas juste, mais on s’ajuste ! par Marie-Eve Chartré, Johanne Gagné, et Vanessa Destrempes
 Videos

CHEO IBD Centre - Youtube 

Cartoon GI videos

 

Information handouts

Taking pills

Needle phobias 

Mindful tips for those with IBD

Nutrition for children with IBD

You are free to copy and redistribute these materials in any medium or format. This work may not be used for commercial purposes. View the full Creative Commons license.

Transition to adult care
  • Interactive learning module
  • Guidebook for parents
  • Information for parents
  • Checklist for ages 12-14
  • Checklist for ages 15-16
  • Checklist for age 17
Learning modules

Image of first page of flu shot learning moduleFind out about IBD and the flu to see if the flu shot is right for you.

Flu shot module

This educational module is free for non-profit use, and brought to you by the care team at the CHEO IBD Centre. It is protected under terms of the Creative Commons license.

Websites
  • Blackboards and bathrooms - a comprehensive resource to help teachers support the education of children with IBD. 
  • Camp Got2Go - Crohn’s and Colitis Canada's one-week, overnight summer camp for children and youth living with Crohn’s disease and ulcerative colitis

  • Crohn’s and Colitis Canada 
  • Crohn’s and Colitis Foundation 
  • GI Kids - NASPGHAN patient education website 
  • IBDtermined - (CCFA site for youth and young adults)
  • Just Like Me IBD - information and resources you need to enjoy life and all that comes with it.
  • Sophie's Science Project - a comic-book style to help parents and children learn about clinical research.
  • Stressed Teens ToolBox - provides mindfulness resources for teens and their parents.
Articles
The impact of IBD for children in Canada
  • Abstract
  • Read article in Journal of the Canadian Association of Gastroenterology
To tell or not to tell others about your IBD
  • Abstract
  • Read article in Social Science & Medicine
Apps
GoHere washroom finder

Available for iPhone and Android

 

Doc4Me

Available for  iPhone, Android 

Local contacts
Crohn’s and Colitis Canada - Ottawa
613-806-7956
ottawa@crohnsandcolitis.ca

Disclaimer

These resources are for educational purposes only. If you have any questions, ask your health-care provider.

Resources for health-care professionals

 Journal articles
Strategies to improve influenza vaccination uptake

IBD journal cover

  • Abstract
  • Read paper
Primary care provider anticipatory care for children with IBD review
  • Abstract
  • Read paper in Current Opinion in Pediatrics
Clinical practice guidelines for Crohn's disease in children

Canadian Association of Gastroenterology journal cover

  • Abstract
  • Read paper in Journal of the Canadian Association of Gastroenterology
Pediatric IBD INTERMED

Journal cover of the Journal of Psychosomatic Research

  • Pediatric IBD INTERMED information for professionals (accessible version)
  • Read paper in Journal of Psychosomatic Research

 

Manuals
Pediatric IBD INTERMED manual
Transition to adult care

IBD Centre Transition Plan - Information for IBD Nurses

IBD Centre Transition Plan Guidebook for Nurses (printable version)

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