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HomeResources and SupportA-Z resourcesSickle cell anemia

Sickle cell anemia

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Below you will find a variety of resources to help you better understand, cope with and/or support someone with sickle cell anemia.

Books 

Hope and destiny: a patient's and parent's guide to Sickle Cell Disease and Sickle Cell Trait / Platt, Allan F.

Roscoe, IL: Hilton Pub, 2002

This resource provides clear-cut and in-depth information on living with the illness. It offers the information on preventing complications, research, and treatment. The knowledge patients and family members need is organized in an easy-to-read format that promotes overall healthy living.

Nutrition for the child with sickle cell disease / Willams, Ruth. 

Memphis, TN: St. Jude Children's Research Hospital, 1996

This book for children with sickle cell disease contains facts about nutrition, activities to help them learn about nutrition, and a section for parents.

Sickle cell disease / Peak, Lizbeth. 

Detroit: Lucent Books, 2008.

Discusses the causes, symptoms, and treatment options for sickle cell anemia and describes what populations are predisposed toward the disease.

Sickle cell disease / Jones, Phill.

New York: Chelsea House Publishers, 2008.

Explores the scientific discoveries that led to an understanding of the genetic basis of the disease, explaining how a single mutation in hemoglobin multiplies into the many symptoms of sickle cell disease. Also investigated are treatments that help individuals manage sickle cell disease symptoms, and how gene therapy and stem cell therapy may one day lead to a cure for the disease.

Understanding sickle cell disease / Quigley, Columba; deLoache, Shawn.

New York: Medikidz USA Inc., 2018.

In graphic novel format, the Medikidz, superheroes from the planet Mediland, help Tiahna understand sickle cell disease.

CHEO fact sheets

Find information from CHEO experts:

Sickle Cell Disease

Websites 

  • Sickle Cell Anemia – MedlinePlus from the U.S. National Library of Medicine 
  • Sickle Cell Anemia – About Kids Health
  • Sickle Cell Anemia - Kids Health – Information for Kids, Teens and Parents from the Nemours Foundation
  • Sickle Cell Association of Ontario
  • What Is Sickle Cell Anemia? – National Heart, Lung and Blood Institute
  • Sickle Cell Awareness Group of Ontario
  • Anémie falciforme – Santé et services sociaux Québec
  • Sickle Cell Anemia Association of Québec

Local contacts

Sickle Cell Association of Ontario
1171 McCowan Road, P.O. Box 41562
Toronto, ON M1S 5G8
416-789-2855
info@sicklecellontario.ca

Sickle Cell Anemia Association of Québec
7333, rue Saint-Denis, bureau 3
Montréal, QC H2R 2E5
514-507-0891
info@aafq.org

Disclaimer

These resources are for educational purposes only. If you have any questions, ask your health-care provider.

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