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HomeResources and SupportA-Z resourcesFASD

FASD

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Fetal alcohol spectrum disorder (FASD) is the effect to the brain and body of exposure to alcohol before birth. FASD is a lifelong disability. People with FASD will experience some daily living challenges, and need support with motor skills, physical health, learning, memory, attention, communication, regulation emotions, and social skills.

Below you will find a variety of resources to help you better understand, cope with and/or support someone with fetal alcohol spectrum disorder (FASD).

Books

The best I can be: living with fetal alcohol syndrome-effects

Kulp, Liz -- Brooklyn Park, MN: Better Endings New Beginnings, 2000.

Written by a young girl with FAS and co-written by her adoptive mother, this short book is packed with information and provides a unique perspective.

Born broken: an adoptive journey

Berry, Kristin. -- Green Forest, AR: New Leaf Press, 2017.

Kristin Berry tells her family's adoption story honestly, and does not shy away from the challenges she and her family has faced, including isolation and depression. Written with her son's blessings, in the hopes that others will learn about and understand what it is like to live with Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Spectrum Disorders FASD.

The challenge of fetal alcohol syndrome: overcoming secondary disabilities

Seattle, WA: University Of Washington Press, 1997.

Expert recommendations and strategies for individuals living with fetal alcohol syndrome and fetal alcohol effects in order to improve daily life. Appropriate for Adults

Damaged angels: a mother discovers the terrible cost of alcohol in pregnancy

Buxton, Bonnie -- Toronto: Knopf Canada, 2004.

The in depth story of a family's adoption of a child with fetal alcohol spectrum disorder, and the joys and triumphs that resulted.

Fantastic Antone grows up: adolescents and adults with fetal alcohol syndrome

Fairbanks, AK: University of Alaska Press, 2000.

Parents, teens and young adults will find it to be hopeful yet realistic and full of practical advice. Thoughtful and informative articles by parents, siblings and FAS/E affected young people are hard to put down.

Fantastic Antone succeeds! experiences in educating children with FAE-FAS

Fairbanks, AK: University of Alaska Press, 1993.

This book describes in concrete, specific ways how to educate children with fetal alcohol syndrome/fetal alcohol effects (FAS/FAE). It communicates an optimistic message that is both true and appealing: with the right education, delivered by a nurturing individual in the home or in the school, many alcohol-affected children thrive.

Fetal alcohol syndrome: a guide for families and communities

Streissguth, Ann Pythowicz -- Baltimore, MD: Paul H. Brookes Publishing, 1997.

Compelling and easy to understand, this book explains the medical and social issues surrounding fetal alcohol syndrome (FAS) and fetal alcohol effects (FAE). Compassionately written by the expert psychologist who conducted some of the earliest examinations of children with FAS and FAE more than 20 years ago, this guidebook explains how to identify and work with children and adults who have the disorder and how to educate prospective mothers and society at large.

Fetal alcohol syndrome: the real brain drain

Szabo, Paul -- Ottawa: Paul Szabo, 2000.

Let's talk FASD: parent driven strategies in caring for children with FASD: parlons de l'ETCAF: stratégies venant des parents pour le soin des enfants ayant l'ETCAF

Ottawa, ON: VON Canada, 2005.

This resource, available free online, provides practical tips, technique and strategies to help parents meet the needs of children with FASD.

Not exactly as planned: a memoir of adoption, secrets and abiding love

Rosenbaum, Linda. -- Bradford, ON: Demeter Press, 2014.

This is a personal account of adoption and the unexpected challenges of raising a child with fetal alcohol syndrome. Linda Rosenbaum’s life takes a major turn when her son, adopted at birth, is diagnosed with irreversible brain damage. With love, hope and all the medical knowledge she can accumulate, she sets out to change his prognosis and live with as much joy as she can while struggling to accept her new reality.

Parenting children affected by fetal alcohol syndrome: a guide for daily living

Vancouver, BC: Society of Special Needs Adoptive Parents, 1998.

This book, which is also available online, provides parents and caregivers information on common manifestations, common misconceptions, parenting suggestions, guidelines for daily living, special considerations for infants and adolescents and talking to our child about FAS.

Sam's bear

Collins, Rob; Hammond, Merryl. -- Kahnawake, QC: National Indian & Inuit Community Health Representatives Organization, 2009.

First part of the book is an illustrated story for children followed by a guide for parents and teachers explaining brain development and what affects it in early years.

 Your fantastic elastic brain: stretch it, shape it

Deak, JoAnn. -- Naperville, IL: Little Pickle Press, 2017.

This innovative and timely picture book teaches children that they have the ability to stretch and grow their own brains. The book introduces children to the anatomy and various functions of the brain in a fun and engaging way.

Websites

  • 2015 Canadian FASD Diagnostic Guidelines
  • CanFASD
  • CHEO Fetal Alcohol Spectrum Disorder page (information and referral)
  • FASD Ontario Network of Expertise
  • FASD Information for Ontario
  • Fetal Alcohol Resource Program — ABLE2
  • Fetal Alcohol Spectrum Disorder (FASD) – About Kids Health
  • Fetal Alcohol Spectrum Disorders (FASD) – Centre for Addiction and Mental Health
  • Fetal Alcohol Spectrum Disorder (FAS) - Public Health Agency of Canada
  • Fetal Alcohol Spectrum Disorders (FASD) - US National Library of Medicine
  • Ontario Ministry of Children, Community and Social Services FASD Strategy
  • Rural FASD Support Network (includes Prescott Russell, Lanark, Leeds & Grenville and Stormont, Dundas and Glengarry) 
  • Best Start 
  • SAFERA - SAF syndrome d'alcoolisation fœtale Québec

Local contacts

Fetal Alcohol Resource Program
ABLE2
312 Parkdale Ave
Ottawa, ON K1Y 4X5
613-761-9522 
fasd@able2.org

Disclaimer

These resources are for educational purposes only. If you have any questions, ask your health-care provider.

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