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HomeResources and SupportA-Z resourcesTourette syndrome

Tourette syndrome

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Below you will find a variety of resources to help you better understand, cope with and/or support someone with Tourette syndrome.

Books

Adam and the magic marble

Beuhrens, Adam -- Duarte, CA: Hope Press, 1991.

Two boys with Tourette syndrome find a magic marble that can cure their disorder but decide that their friend with cerebral palsy needs the marble more than they do.

Children with Tourette syndrome: a parents' guide

Bethesda, MD: Woodbine House, 2007.

Written by leading experts in the field and experienced parents, this guide provides an excellent blend of professional expertise and empathetic advice. Families with newly diagnosed children find answers to their most pressing questions about this often perplexing neurological disorder, as well as coping strategies and emotional support.

I can't stop! a story about Tourette syndrome

Niner, Holly L -- Morton Grove, Il: Albert Whitman & Company, 2005.

A boy is diagnosed with Tourette syndrome and learns about constructive ways he can manage his condition. Includes nonfiction information from a physician.

Jerk, California

Friesen, Jonathan -- Toronto: Paw Prints, 2008.

Wrought with tension, romance, and hope, Jerk, California tells the story of Sam, who sets out on a cross-country quest to learn the truth about his family and his inherited Tourette's Syndrome, along the way finding both love and acceptance.

I have Tourette's but Tourette's doesn't have me: dispelling the myth one child at a time [DVD]

Walkup, John -- New York: HBO & Tourette Syndrome Association, Inc. 2005

Children with Tourette's Syndrome, ages 6 to about 14, candidly describe what it's like to have Tourette's. They show what their tics are like, talk about difficulties with school, social isolation, embarrassment, and feeling misunderstood and even unwanted due to the inherited condition they have no control over.

Kids in the syndrome mix of ADHD, LD, Asperger's, Tourette's, Bipolar, & more: the one stop guide for parents, teachers and other professionals

Kutscher, Martin L -- London: Jessica Kinsley, 2005.

The author presents effective behavioral strategies for responding to children who display traits of these disorders - whether at home, at school, or in other settings - along with case vignettes and practical tips. His sympathetic yet upbeat approach and skillful explanations of the inner world of children in the syndrome mix make this an invaluable companion for parents, teachers, professionals, and anyone else who needs fast and to-the-point advice on children with special needs.

A mind of its own: Tourette's syndrome: a story and a guide

Bruun, Ruth Dowling -- New York: Oxford UP, 1994.

It presents factual information on all important aspects of TS along with a composite case history. The story of Michael Lockman, who typifies the average child with TS, is woven into the factual text which contains information on symptomology, diagnosis, natural history, biochemistry, genetics, associated disorders, treatment and related topics.

Taking tourette syndrome to school

Krueger, Tire. -- Plainview, NY: JayJo Books, 2001.

Megan, a young girl, explains what it is like to live with Tourette Syndrome, a nervous system disorder that causes her to make sudden, uncontrolled movements or sounds known as tics.

Tic talk: a 9-year-old boy's true story about living with Tourette syndrome

Peters, Dylan -- Chandler, AZ: Five Star Publications, 2009.

In his own words, Dylan helps readers of all ages understand Tourette Syndrome and the enormous pressures this little understood affliction places on those who have it and on those who love them.

Understanding Tourette syndrome: a handbook for families

Toronto: Tourette Syndrome Foundation of Canada, 1998.

A compassionate handbook for the family and friends of those newly diagnosed with TS, written by experts and parents who've been through it all.

The unwelcome companion

Fowler, Rick -- Cashiers, NC: Silver Run Publications, 1996.

The author carries his audience along on the painful and poignant journey to find a proper diagnosis and treatment for his disorder, evoking curiosity and compassion in a way no clinical manual can.

Websites

  • Tourette Syndrome – MedlinePlus from the U.S. National Library of Medicine
  • Tourette Syndrome Foundation of Canada
  • Tourette Canada – Ottawa Chapter
  • Tourette Syndrome Fact Sheet – National Institute of Neurological Disorders and Stroke 
  • Kids Health – Information for Kids, Teens and Parents from the Nemours Foundation
  • Association québécoise du syndrome de la Tourette
  • Le syndrome de Gilles de la Tourette – Centre d'évaluation neuropsychologique et d'orientation pédagogique FL

Videos


Local Contacts

  • Tourette Canada - Ottawa Chapter 
    613- 823-1471
    info@tsottawa.com

Disclaimer

These resources are for educational purposes only. If you have any questions, ask your health-care provider.

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