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HomeResources and SupportA-Z resourcesNeonatal Intensive Care/Premature babies

Neonatal Intensive Care/ Premature babies

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Below you will find a variety of resources to help you better understand, cope with and/or support someone with a premature baby.

Books 

Caring for your premature baby: a complete resource for parents / Klein, Alan H. 

New York: HarperCollins, 1998.

The premature birth of a baby often takes parents by surprise, leaving them unprepared for the puzzling emotions and medical complications that may follow early deliveries. This is a comprehensive and reassuring guide that looks at everything from medical information, to the incredible importance of a parent’s loving touch. It shows parents how to work with the healthcare team in providing the baby with the very best care.

Juniper: the girl who was born too soon / French, Kelley; French, Thomas. 

New York: Little Brown and Company, 2016.

Juniper French was born four months early, at 23 weeks gestation. She weighed 1 pound, 4 ounces, and her twiggy body was the length of a Barbie doll. Babies like Juniper, born at the edge of viability, trigger the question: Which is the greater act of love, to save her, or to let her go? Kelley and Thomas French chose to fight for Juniper's life, and this is their incredible tale.

The moment you were born: a story for you and your premature baby / Lane, Sandra M.; Miles, Brenda; Hehenberger, Shelly (ill.). 

Washington, DC: Magination Press, 2016.

A gentle and soothing story for you and your baby as you share moments in the Neonatal Intensive Care Unit (NICU). Reading and talking to your baby are ways to provide a loving connection during your time in the NICU.

Newborn intensive care: what every parent needs to know 

Petaluma, CA: NICU Ink, 2009.

Topics range from identification of the healthcare professionals working in a neonatal intensive care unit (NICU) to typical problems with special-care babies to moving out of the NICU, including a chapter about dealing with the death of a special-care baby.

 The next steps: caring for your preemie at home.

Ottawa: Canadian Institute of Child Health and Infant Development Service Ottawa Children's Treatment Centre, 2003.

This guide will educate parents and caregivers about caring for a premature infant at home. It contains sections on topics such as feeding a premature infant, developmental milestones for premature babies up to two years of age, and recognizing and coping with postpartum disorder.

The preemie parents' companion: the essential guide to caring for your premature baby in the hospital, at home and through the first years / Madden, Susan L. 

Boston: The Harvard Common Press, 2000.

A comprehensive guide for parents along every step of what is sure to be a journey full of challenges and rewards, it covers: how to be informed partners with the healthcare team in the newborn intensive care unit; coping with possible medical complications and their treatment; ways to hold your baby; special feeding and nutritional needs; getting the most from follow-up visits with your paediatrician; weight, height, and other growth milestones; what to expect as your premature child progresses through toddler-hood and into preschool and school. 

Preemies: the essential guide for parents of premature babies / Linden, Dana Wechsler. 

New York, Toronto: Pocket Books, 2010.

The authors are parents who have "been there." Together with neonatologist Mia Wechsler Doron, they answer the dozens of questions that parents will have at every stage, from high-risk pregnancy through preemie's hospitalization, to homecoming and the preschool years, imparting a vast, detailed store of knowledge in clear language that all readers can understand.

Websites 

  • Canadian Premature Babies Foundation 
  • Préma-Québec: L’Association québécoise pour les enfants prématurés
  • Premature Babies – About Kids Health 
  • When Your Baby is in the NICU - Kids Health – Information for Kids, Teens and Parents from the Nemours Foundation
  • A Primer on Preemies - Kids Health – Information for Kids, Teens and Parents from the Nemours Foundation
  • Premature Babies – MedlinePlus from the U.S. National Library of Medicine
  • Preemies – March of Dimes
  • Going Home with Your Preemie – Healthy Children
  • Preemie Health Concerns – Healthy Children
  • Premature Baby? Understand your preemie’s Special Needs – MayoClinic.com
  • The Neonatal Unit – Baby Centre

Apps 

MyPreemie App
Free
Last updated April 2017
Available from Google Play and iTunes

 

Baby Tracker
Free
Last Updated Jan 2018
Available from Google Play

 

LactMed
Free
Last updated March 2015
Available from Google Play and iTunes

Videos


Disclaimer

These resources are for educational purposes only. If you have any questions, ask your health-care provider.

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