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Alex: the life of a child / Deford, Frank.
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Nashville, TN: Rutledge Hill Press, 1997.
FAM RJ 456 .C9 D43 1997
Alexandra Deford, a precious and precocious girl, was just eight years old when she died in 1980 following a battle against cystic fibrosis. Her poignant and uplifting story touched the hearts of millions when it was first published and then made into a memorable television movie. A new introduction contains information on the latest cystic fibrosis research, and a touching postscript reveals how the Deford family came to terms with the loss of Alex.
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CF and you: a guide for adolescents
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Ottawa, ON: Carleton UP, 1996.
FAM RJ 456 .C9 C24 1996
This book offers sensible advice on dealing with CF clinic staff, coping with school physiotherapy, and discussing CF with friends and family. In response to concerns voiced by adolescents with CF, this revised edition tackles issues such as sexuality and personal relationships unique to people with CF. Also included is a section dealing with the transition to adult CF clinic care.
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Cystic Fibrosis / Abramovitz, Melissa.
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San Diego: Lucent Books, 2003.
FAM RJ 456 .C9 A274 2003
Explores the history, symptoms, diagnosis, and treatment of cystic fibrosis, reviews ongoing research, and discusses how to live with the incurable genetic disease that is often called "65 Roses."
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Cystic fibrosis: the ultimate teen guide / Apel, Melanie Ann.
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Lanham, MD: The Scarecrow Press, Inc. 2006.
FAM RJ 456 .C9 A74 2006
Based on interviews with people living with CF and their family members. Covers all aspects of the disease such as the day-to-day dealings with the illness, diagnoses procedures, daily therapies, and stories of CF patients now in their 30's and 40's.
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Little brave ones: for children who battle cystic fibrosis / Lux, Carrie.
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Charleston, SC: Booksurge, 2005.
FAM RJ 456 .C9 L79 2005
This picture book tells the story of one day in the life of a little girl fighting Cystic Fibrosis. It was written in order to help these small but mighty few find a sense of commonality and see fun photos of other kids who are just like themselves.
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Living with Cystic Fibrosis / Gray, Susan H.
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Chanhassen, MN: The Child's World, 2002.
FAM RJ 456 .C9 G73 2002
Introduces readers to the disease of cystic fibrosis, its causes, how it affects the body, and what it's like to live with the disease.
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Mallory's 65 roses / Smith, Diane Shader.
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FAM RJ 456 .C9 S64
This is an engaging story of Mallory, a creative and energetic little girl afflicted with cystic fibrosis (CF), an inherited lung disease. She explains her condition and its ramifications in her own words, painting a picture accessible to children and poignant to adults.
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Miguel and Sarah: close friends and cystic fibrosis / Dowell, Andrea C.
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Minneapolis, MN: Children's Hospitals and Clinics - Minneapolis, 1999.
FAM RJ 456 .C9 D68
Miguel explains what he has learned about Cystic Fibrosis from his friend Sarah, who has the disease. Appropriate for children aged 5-14.
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The official parent's sourcebook on cystic fibrosis
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San Diego, CA: ICON Health Publications, 2004.
FAM RJ 456 .C9 O3 2004
A reference manual for self-directed patient research. Includes web-site listings not likely found using the popular web directories.
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Parenting children with health issues: essential tools, tips, and tactics for raising kids with chronic illness, medical conditions and special healthcare needs / Cline, Foster.
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Golden, CO: Love & Logic Press, 2007.
FAM RJ 380 .C62 2007
Offers parents of children with chronic health issues practical strategies and suggestions to help them cope with their child's condition and the constant physical and emotional challenges they face.
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Taking Cystic Fibrosis to school / Henry, Cynthia S.
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Valley Park, MO: Jayjo books, 2000.
FAM RJ 456 .C9 H46
Designed to help kids better understand their classmates with cystic fibrosis, this brightly illustrated picture book also educates families, teachers, school nurses, parents, and caregivers. Appropriate for ages: 5-10 years.
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Understanding cystic fibrosis / Hopkin, Karen.
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Jackson: University Press of Mississippi, 1998.
FAM RJ 456 .C9 H56 1998
Understanding Cystic Fibrosis charts the progress that has been made in identifying the mutations that cause CF and in understanding how these genetic errors cause a disease whose symptoms can range from mild respiratory distress to life-threatening lung infections.
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