Inflammatory Bowel Disease Centre

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Making kids better, like Sebastien!

The Inflammatory Bowel Disease (IBD) Centre at CHEO provides a comprehensive multidisciplinary team approach to treatment of children diagnosed with these disorders, the two most common sub-types being Crohn’s disease and ulcerative colitis. The Centre is within the Division of Gastroenterology, Hepatology and Nutrition.

The Centre is committed to delivering quality care through:

• improving patient outcomes
• commitment to research and knowledge sharing
• adopting a multidisciplinary approach
• translating evidence-based care into practice
• maintaining professional relationships with organizations and industry

Meet the IBD Centre team

Making a difference and obtaining the overall wellness for each child and youth is what we strive for. We have many experts working together to do this including:

Physicians

Dr. David Mack, MD, FRCPC Dr. Mack's Pediatric Gastroenterology fellowship training was completed at the Hospital for Sick Children, University of Toronto. Following training, Dr Mack was appointed to Faculty of Medicine at the University of Nebraska Medical Centre prior to being recruited to Ottawa. In 2001, he was recruited to Ottawa with an appointment of Professor of Pediatrics at the University of Ottawa with a mandate and vision to develop a Division of Pediatric Gastroenterology, Hepatology and Nutrition. Aligning with excellence, staying focused on the goals, being consistent in optimism, patience, integrity, respectfulness, passion and communicating defined his tenure. Over the years the Division has recruited strong members to expand its clinical expertise, increase diagnostic capabilities for the children and youth served by CHEO and moved forward with a strong research program. While recently stepping down from Division Chief he will remain as Director of the CHEO IBD Centre, continue with translational intestinal microbiome research in IBD along with various national leadership roles. He recently received the Canadian Association of Gastroenterology Distinguished Service Award. In 2020, Dr. Mack received the Distinguished Clinical Research Chair Award from the University of Ottawa Faculty of Medicine. Distinguished Clinical Research Chair Professor, Department of Pediatrics, Faculty of Medicine, University of Ottawa Director, CHEO Inflammatory Bowel Disease (IBD) Centre Past Chief, Division of Gastroenterology, Hepatology and Nutrition Dr. Nicholas Carman, BSc, MBBS, FRACP Dr. Carman's Pediatric Gastroenterology fellowship training was completed at the Royal Children’s Hospital in Brisbane, Australia. He subsequently moved to Canada to undertake an advanced clinical research fellowship in Inflammatory Bowel Disease at the Hospital for Sick Children in Toronto in 2014. In 2017, he was recruited to join the Division of Pediatric Gastroenterology, Hepatology and Nutrition at CHEO with an appointment as an Assistant Professor of Pediatrics at the University of Ottawa. Dr. Carman has a special clinical interest in advanced intestinal diagnostic techniques in the diagnosis and management of gastrointestinal diseases. Dr. Carman’s research interests are focused on children with Inflammatory Bowel Disease. Assistant Professor, Department of of Pediatrics, Faculty of Medicine, University of Ottawa Director, Advanced Endoscopic Diagnostics and Therapeutics Division of Gastroenterology, Hepatology and Nutrition

Nurse case managers

Nathalie Fournier, RN, BScN, NSWOC Nathalie has been part of the CHEO family since graduating nursing from uOttawa in 1986. She joined the newly created Gastroenterology and Clinical Nutrition service in 1998, the same year she won an award for Excellence in Professional Practice. In addition, she is a nurse specializing in wound and ostomy care and has published through CAET’s magazine for youth with ostomies, entitled Body Talk. Nathalie was also a collaborator in the “IBD Doesn’t Define Me” booklet – personal stories from people living with Crohn’s Disease and Ulcerative Colitis. She enjoyed being a facilitator for IBD support groups. She developed many of the GI/IBD educational pamphlets and keeps them up to date. Louise Lenz, IA, B.Sc.Inf. Louise has over 40 years of healthcare experience in hospitals in Saskatchewan, Germany, Quebec and Ontario, having held a variety of positions such as staff nurse, clinical educator, assistant head nurse, head nurse, clinical manager and director. Louise has stepped into the Nurse Case Manager(NCM) role and maintains her primary goal of helping kids and families. Louise supports the CHEO IBD Centre Research projects.

Research team

Ruth Singleton, RN, CCRP, Clinical Research Lead After graduating from nursing, Ruth has enjoyed diverse nursing experiences in Canada and the U.S. It was during her time in Toronto that evidence-based nursing and research became a passion. Following that, her appreciation and respect of children was apparent when she worked tirelessly during her 11 years in the U.S where she was granted the Nebraska PTA State Life Award for outstanding service to children and youth. The CHEO Research Institute recognized her for her work as Clinical Research Coordinator for Gastroenterology Research. This continued work ethic and enthusiasm is now focused on IBD Research. Adrienne Gowing, MSc, CCPA – Clinical Research Coordinator Adrienne joined the CHEO IBD Centre research team after having spent 5 years as the Physician Assistant for the Division of Gastroenterology, Hepatology and Nutrition. During that time Adrienne cared for many of the children and youth who were admitted to hospital for management of their inflammatory bowel disease. She now brings her expertise and enthusiasm to the research studies involving Crohn’s disease and ulcerative colitis. Pauline Barbeau, BHSc, MSc - Clinical Research Coordinator Pauline graduated from the University of Ottawa’s Health Sciences Program in 2010 and completed her Master’s degree in Epidemiology. She is elated to be a part of the IBD research team where the health of children affected by gastroenterological issues are of top priority. As a research coordinator, she is excited to be involved with a variety of projects. Pauline's main focus is the Canadian Children Inflammatory Bowel Disease Network (CIDsCaNN). Tyrus Crawford - Clinical Research Coordinator, REDCap Data Manager Tyrus has been with the CHEO Research Institute since 2012. During this time, he has worked as a Research Assistant, Research Coordinator, and as the REDCap Administrator for the Research Institute and CHEO. From these roles, Tyrus has gained experience in both the coordination of clinical trials and also data management for these studies using REDCap. Tyrus is excited to be working as part of the IBD Centre Research Team as the REDCap Data Manager on a wide variety of projects. Hala Mustafa Elkhaboli, BSc – Clinical Research Assistant Hala’s interest and passion for clinical research started as a volunteer. Her calm, positive attitude and her interest in the complexities of clinical research provided a seamless transition into the focused research studies at the CHEO IBD Centre. Hala’s involvement with the Microbiome studies, that include trials involving resistant starch in IBD, allows her to be an integral part of their success. Amanda Mack, BScN, BEd, MSc - Clinical Research Coordinator REDCap Amanda started volunteering in the Division of Gastroenterology in 2006 and continues on as Research Coordinator. Amanda is a strong asset to many of the research and clinical projects underway at the CHEO IBD Centre. Her current focus concentrates on development and implementation of REDCap databases for the CHEO IBD Centre. She is a valuable member of the team volunteering to take on multiple projects outside of her work to support the CHEO IBD Centre and CHEO.

Social worker

Krystel Marleau-Rancourt, BSW, RSW Krystel has been working with children and families for more than 15 years. In 2010, she started her professional career at the Montreal Children’s Hospital with patients having acute needs and the patients with chronic needs. It was followed by a period in the education domain at the Conseil des Écoles Publiques de l’Est de l’Ontario and for a private institution abroad. The wellbeing of children and their families is her main focus and she is always glad to offer a listening ear. In 2020, she was pleased to join the CHEO IBD Centre. She facilitates adaptation to a new diagnosis and offers comforting support to youth and families.

Dietitians

Sydney Harris-Janz, BSc, RD Sydney completed her Bachelor of Human Nutritional Sciences at the University of Manitoba (2009), and Dietetic Internship via the Ottawa Hospital Dietetic Internship Program (2010). She worked at the Canadian Centre for Agri-Food Research Health and Medicine at the St. Boniface Hospital Research Centre and also the Richardson Centre for Functional Foods and Nutraceuticals in Winnipeg. Sydney joins the Gastroenterology Team at CHEO in 2015 after working in several other clinical areas at CHEO including Hematology/Oncology, Immune Deficiency, and General Medicine.

Pharmacy technician

Julie Lalonde, Registered Pharmacy Technician With over 20 years’ experience in retail pharmacy, Julie joined the CHEO IBD Centre in 2020. After graduating in 2003 with a degree in biochemistry, Julie bridged into courses in the pharmacy technician program that enabled her to become registered in Ontario in 2010. From them on, she has proudly worked at CHEO as a Registered Pharmacy Technician. You will now meet Julie at your Wednesday IBD appointments where she records patient measurements, vital signs, and reviews allergies and medications. Julie is an integral part of the IBD team.

Administrative assistant

Susan Lemieux  Susan is a graduate of the Secretarial Science program at Vanier College in Montreal, Quebec and received her certificate in French Studies from Concordia University. She previously worked at The Montreal Children’s Hospital in administration before joining CHEO in March 2011. Susan is the Administrative Assistant for the Division of Pediatric Gastroenterology, Hepatology and Nutrition.

Need more information? Visit our online resource section to access CHEO recommended websites, books, apps, videos and more!

Events

IBD Youth Gut Together 2021 postponed until further notice

Scholarship opportunities

Featured stories

Researchers tackle Crohn’s disease and ulcerative colitis in children

Genome Canada recently awarded Dr. David Mack, Dr. Alain Stintzi along with a team of researchers at the University of Ottawa and CHEO $9.1 million to help crack the mystery of the intestinal microbiome in Crohn's disease and ulcerative colitis (Inflammatory Bowel Disease - IBD) and find better treatments. With these funds, the team expects to make a significant difference in the lives of children like Sebastien. Read Sebastien's story.

Meet our benefactors

Be inspired by the outstanding commitment, leadership and support exemplified by our donors. Learn more about the significant ways in which these incredibly generous donors and friends have contributed to the CHEO IBD Centre, and how they continue to help us build a community of healthy children both here and around the world.

IBD Foundation Supports IBD Research with the “Wheels of Research”

The “Wheels of Research” is an interactive tool that engages families in Research Projects. Made possible by the generous funding and resources of the IBD Foundation, the “Wheels” are spinning with new ideas, research overviews and the opportunity for discussion. Placed in the CHEO IBD Centre beside a wall of published articles already produced from research that our families have participated in, families are encouraged to ask about research and have opportunity to be involved.

IBD Foundation Donates “Your Child With Inflammatory Bowel Disease” books for every family newly diagnosed at the CHEO IBD Centre

The book "Your Child with Inflammatory Bowel Disease" is an educational resource for parents of children and adolescents who have been diagnosed with Crohn's disease or ulcerative colitis. It was written by expert specialists in pediatric IBD who are members of the North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition (NASPGHAN). Dr. Mack, Director of the CHEO IBD Centre, is a contributing author to this book. It is designed to help families understand what is happening or might happen to their child when he or she has been diagnosed with this chronic intestinal condition. The family of every child diagnosed with IBD at the CHEO IBD Centre is given a copy of this book to take home thanks to a generous donation and the continued support by the IBD Foundation.

Kick Off For Kids Tailgate Party

RedBlacks President Jeff Hunt and the IBD Foundation hosted the “Kick Off For Kids” Tailgate Party to raise awareness and funds for the Inflammatory Bowel Disease (IBD) Centre at the Children’s Hospital of Eastern Ontario. Event ambassador Angus Albinati, 11 yrs old, donated funds he raised and stored in his piggy bank to total the dollars raised at the event to over $17,000.00! Pictured are IBD Champions who were given the VIP treatment at the home opener and were illuminated on the Big Screen while feeling what is like to stand on the field at half time!

Research

As well as providing patient care and family support based on the most current approaches to diagnosis, treatment and long-term management, the Centre conducts basic laboratory research and patient studies in pediatric IBD. The research is conducted both through the CHEO Research Institute and collaboratively with other related institutes and centres.

We value and strive to uphold the attributes of diversity, equity, inclusion, and accountability in our group's research culture.

Education and training

The IBD Centre is committed to sharing knowledge of the oftentimes complex and specialized care that may be required for children with IBD and their families.

The IBD Centre also provides training and education opportunities for learners, health professionals and researchers in our region and beyond.  

With an environment of learning and knowledge transfer between patients, care personnel and scientists we hope optimizing patient outcomes will be the result.

Donate now

You can help fund important research by donating to our IBD fund through the CHEO Foundation. When making your donation, please select 'other' and specify either gastroenterology fund or IBD fund.

Make a donation

We value and strive to uphold the attributes of diversity, equity, inclusion, and accountability in our group's research culture.